and Appendix Cancer
Emotional support and practical advice that’s proven to make a real difference
We are family
We’ve found our supportive community has become like one, big extended family. When you have been diagnosed with pseudomyxoma peritonei (PMP) or appendix cancer, it’s tough. No-one quite understands what you are going through quite as much as someone else who has been there or is going through it themselves. We have different ways of reaching out, of sharing what we have been through. Hopefully, you will find a way that’s right for you whether that is a support group, sharing stories or maybe having someone to one support.
This is support group for you if you’ve been in some way affected by pseudomyxoma peritonei, appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support as well as the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.
If you’re a PMP or appendix cancer patient or caregiver and would like some mutual support, we’d love to see you in our community.
RareConnect's Pseudomyxoma Peritonei Community
As recognised patient advocates, we host the pseudomyxoma peritonei community on RareConnect, a forum where we can communicate with others in different languages, with human translation. Created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders), Rare Connect provides a multilingual safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources. We are proud to be the founding organisation of this community.
HealthUnlocked is the world’s largest social network for health, with 1 million members across the globe, and growing. If you like social but you aren’t a Facebook user, this is the community for you. The community offers peer support with others affected by pseudomyxoma peritonei and appendix cancers. It’s a place where you can share experiences and get answers to questions about your conditions and wellbeing needs.
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Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases across the world and to their families.
An Angus man who suffered from the cancer that took Audrey Hepburn’s life is raising awareness of the disease.