Pseudomyxoma Peritonei
and Appendix Cancer
Support
Emotional support and practical advice that’s proven to make a real difference
We are family
We’ve found our supportive community has become like one, big extended family. When you have been diagnosed with pseudomyxoma peritonei (PMP) or appendix cancer, it’s tough. No-one quite understands what you are going through quite as much as someone else who has been there or is going through it themselves. We have different ways of reaching out, of sharing what we have been through. Hopefully, you will find a way that’s right for you whether that is a support group, sharing stories or maybe having someone to one support.
Pseudomyxoma Survivor's Facebook Support Group
This is support group for you if you’ve been in some way affected by pseudomyxoma peritonei, appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support as well as the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.
If you’re a PMP or appendix cancer patient or caregiver and would like some mutual support, we’d love to see you in our community.
Pseudomyxoma Survivor's HealthUnlocked Support Community
HealthUnlocked is the world’s largest social network for health, with 1 million members across the globe, and growing. If you like social but you aren’t a Facebook user, this is the community for you. The community offers peer support with others affected by pseudomyxoma peritonei and appendix cancers. It’s a place where you can share experiences and get answers to questions about your conditions and wellbeing needs.
PseudomyxomaBuddies
We set up our free, one to one Pseudomyxoma Buddy system to supplement the support already given by your family, friends and doctors.
Family Grants
Our Family Grant is a one-off payment of up to £250 awarded to support those affected by pseudomyxoma peritonei (PMP) or appendix cancer, be they a patient or a family member.
Objectives
Our objectives are focused on support and information, awareness and research.
Information
Find out how we produce our information, about our quality control and how you can help.
You might also want to read
Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases across the world and to their families.
One brave step at a time, Davina’s one-in-a-million cancer diagnosis
Davina Knight stays positive in the face of one-in-a-million cancer diagnosis and she shared her story with The Morning Bulletin.
The Scottish Government have developed an Implementation Plan for Rare Diseases in Scotland as part of the UK Strategy for Rare Diseases.