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Pseudomyxoma Peritonei
and Appendix Cancer

Emotional support and practical advice that’s proven to make a real difference

We are family

We’ve found our supportive community has become like one, big extended family. When you have been diagnosed with pseudomyxoma peritonei (PMP) or appendix cancer, it’s tough. No-one quite understands what you are going through quite as much as someone else who has been there or is going through it themselves. We have different ways of reaching out, of sharing what we have been through. Hopefully, you will find a way that’s right for you whether that is a support group, sharing stories or maybe having someone to one support.

Pseudomyxoma Survivor's Facebook Support Group

This is support group for you if you’ve been in some way affected by pseudomyxoma peritonei, appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support as well as the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.

If you’re a PMP or appendix cancer patient or caregiver and would like some mutual support, we’d love to see you in our community.

RareConnect's Pseudomyxoma Peritonei Community

As recognised patient advocates, we host the pseudomyxoma peritonei community on RareConnect, a forum where we can communicate with others in different languages, with human translation. Created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders), Rare Connect provides a multilingual safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources. We are proud to be the founding organisation of this community.

Pseudomyxoma Survivor's HealthUnlocked Support Community

HealthUnlocked is the world’s largest social network for health, with 1 million members across the globe, and growing. If you like social but you aren’t a Facebook user, this is the community for you. The community offers peer support with others affected by pseudomyxoma peritonei and appendix cancers. It’s a place where you can share experiences and get answers to questions about your conditions and wellbeing needs.


We set up our free, one to one Pseudomyxoma Buddy system to supplement the support already given by your family, friends and doctors.

Family Grants

Our Family Grant is a one-off payment of up to £250 awarded to support those affected by pseudomyxoma peritonei (PMP) or appendix cancer, be they a patient or a family member.


Keep up to date with our Calendar of Events, including conferences, fundraising and awareness days of interest to our community. Please email us if you are organising or know of any psuedomyxoma peritonei or appendix cancer related events and would like them listed here.


Our objectives are focused on support and information, awareness and research.


Find out how we produce our information, about our quality control and how you can help.

You might also want to read

MP backs group work on cancer

MP backs group work on cancer

Susan met with Ilkley MP, John Grogan, to discuss the work of Pseudomyxoma Survivor and Cancer52. Based on current data, 46 percent of cancers diagnosed are rare and less common, yet they account for 54 percent of cancer deaths.

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Cancer-associated thrombosis (CAT) survey

Cancer-associated thrombosis (CAT) survey

Can you help build a better understanding of patient awareness about thrombosis? New patient survey launched across Europe (including the UK).

People with cancer have a higher than normal risk of developing a blood clot – a condition known as cancer-associated thrombosis (CAT). Yet it remains under-reported, seldom discussed and often misdiagnosed.

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