Pseudomyxoma Peritonei
and Appendix Cancer
Support
Emotional support and practical advice that’s proven to make a real difference
Pseudomyxoma Survivor's Facebook Support Group
This is support group for you if you’ve been in some way affected by pseudomyxoma peritonei, appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support as well as the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.
If you’re a PMP or appendix cancer patient or caregiver and would like some mutual support, we’d love to see you in our community.
RareConnect's Pseudomyxoma Peritonei Community
As recognised patient advocates, we host the pseudomyxoma peritonei community on RareConnect, a forum where we can communicate with others in different languages, with human translation. Created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders), Rare Connect provides a multilingual safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources. We are proud to be the founding organisation of this community.
Pseudomyxoma Survivor's HealthUnlocked Support Community
HealthUnlocked is the world’s largest social network for health, with 1 million members across the globe, and growing. If you like social but you aren’t a Facebook user, this is the community for you. The community offers peer support with others affected by pseudomyxoma peritonei and appendix cancers. It’s a place where you can share experiences and get answers to questions about your conditions and wellbeing needs.
You might also want to read
MP backs group work on cancer
Susan met with Ilkley MP, John Grogan, to discuss the work of Pseudomyxoma Survivor and Cancer52. Based on current data, 46 percent of cancers diagnosed are rare and less common, yet they account for 54 percent of cancer deaths.
Cancer-associated thrombosis (CAT) survey
Can you help build a better understanding of patient awareness about thrombosis? New patient survey launched across Europe (including the UK).
People with cancer have a higher than normal risk of developing a blood clot – a condition known as cancer-associated thrombosis (CAT). Yet it remains under-reported, seldom discussed and often misdiagnosed.
Angus man helping to raise awareness of PMP cancer
An Angus man who suffered from the cancer that took Audrey Hepburn’s life is raising awareness of the disease.
