The support network for those affected by pseudomyxoma peritonei, appendix cancers and rare peritoneal malignancies
Find out more about our online spaces where you can meet other people affected by pseudomyxoma peritonei, including a ‘secret’ Facebook group.
More about PMP
We share information about pseudomyxoma peritonei. It isn’t like other types of cancer and it can get confusing. We can help with that.
A one to one, personal and confidential friend to supplement the support already given by your family, friends and doctors. Our Pseudomyxoma Buddies offer a sympathetic ear and insight from their own experience.
We offer practical and emotional advice on managing symptoms and all aspects of living with this rare disease, advocate for patients and more.
Stories from across the world
My overnight hospital stay eventually turned out to be 17 nights!
I was informed that I had pseudomyxoma perintonei (the nurse had to write it down for me) and they were referring me to The Christie specialist cancer hospital in Manchester.
What are the statistics for pseudomyxoma peritonei?
It’s estimated that 1 in 2 people in the UK born after 1960 will be diagnosed with some form of cancer during their lifetime. What numbers are there for pseudomyxoma peritonei (PMP)?
Only 3 or 4 people per year are diagnosed with pseudomyxoma peritonei
Late in 2020, I went to A&E with stomach pains. I had a CT scan which showed a mass in my pelvic cavity the size of a grapefruit.
From patients and from caregivers
I found Pseudomyxoma Survivor shortly after being diagnosed with stage 4 appendix cancer. I thought my life was over. Through the information, support and friendships I have gained from this organisation I am hopeful and currently healthy. They have literally been a lifeline to me in a way that supplements the excellent work that the Health services provided. They understood and encouraged me all the way.
I was diagnosed with appendix cancer in June 2021 after my appendix ruptured. I have since undergone cytoreductive surgery with HIPEC and am due to begin a further course of chemotherapy.
Whilst recovering from surgery in Basingstoke I was first made aware of this fantastic charity. Finding other people that gave similar experiences and reading their stories has helped me understand and cope with my battle against this disease. Pseudomyxoma Survivor has also helped financially through the grant scheme. My claim was handled quickly and has really helped the burden of losing income whilst receiving treatment.
I know that I have much further to go in my journey and there will be hard times ahead, but I also now know Pseudomyxoma Survivor is there to help me and my family through it and that makes a massive difference! Thank you.
What a fantastic charity, they have helped me financially, with advice and to impart knowledge, to meet other patients and with a series of fantastic online seminars and courses. Without Pseudomyxoma Survivor, my day to day life would be significantly more difficult. They are at the heart of new and novel research and treatment options and I am pleased to have been able to support them through my own fundraising. Thank you.
Amazing, supportive group. Without Pseudomyxoma Survivor I don’t know where I would have been. Linked me up with a buddy, who has been invaluable. Also provided me with a grant due to being unable to work at present. Cannot thank this charity enough.