Please click here for our COVID-19 information
Pseudomyxoma SurvivorThe support network for those affected by pseudomyxoma peritonei, appendix cancer and peritoneal surface malignancies
We’re a patient and caregiver run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. As well as all this, we’re people you can share experiences with and share the laughter and the tears.
Together we’re stronger and can face anything.
Stories from across the world
Community pharmacists and their teams are doing their best during these difficult times to make sure that everyone gets the medicines they need. We have today received advice from the Royal Pharmaceutical Society to help them to help you
Here at Pseudomyxoma Survivor, we are doing as much as we can to support us all in the current climate.
As patients ourselves, we were concerned that treatment and monitoring may be affected as our specialists are supporting COVID-19 patients.
People often say things are life-changing; this is truly one of the most life-changing books I have ever read.
From patients and from caregivers
Being relatively new to the group, I just wanted to say how cool I think it is that we are from all over the world and yet we share and are brought together by something so life changing. It is something that bonds us together in a way that shared nationality or age or gender alone never could. I just wanted to let all of you know how much I value knowing you are out there and supporting each other.
Life and its uncertainties are hard enough as a cancer patient but when your income is so low that you don’t have the money to travel to see a cancer specialist, the door of hope and a future for your life is closed to you. That’s what I was facing, but Pseudomyxoma Survivor gave me a financial grant which opened that door for me so I could travel to see my cancer specialist to get the treatment I desperately needed to save my life. They are lifesavers.
I found this website extremely useful with answering questions when I was first diagnosed with pseudomyxoma peritonei. I am almost a year post diagnosis and I could not of managed without the support, the answers, the love and hugs sent when you’re down. It’s an amazing site and the support group is full of lovely people.
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Specialists and surgeons
Our directory is updated with information provided by pseudomyxoma peritonei and appendix cancer specialists themselves and is constantly reviewed.