Pseudomyxoma SurvivorThe support network for those affected by pseudomyxoma peritonei, appendix cancer and peritoneal surface malignancies
If you’ve found Pseudomyxoma Survivor, chances are you’ve been affected in some way by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface malignancy. We’re here to provide emotional support and practical advice, through an online community that’s proven to make a real difference.
We’re a patient and caregiver run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. As well as all this, we’re people you can share experiences with and share the laughter and the tears.
Together we’re stronger and can face anything.
A one to one, personal and confidential friend to supplement the support already given by your family, friends and doctors. Our Pseudomyxoma Buddies offer a sympathetic ear and insight from their own experience.
Stories from across the world
As trustees, we’re volunteers who ultimately take on the legal, strategic and oversight responsibility for the work carried out by Pseudomyxoma Survivor. We take the leadership role in the charity, donating our time to ensure the organisation is sustainable, well managed and delivers impact for the beneficiaries and our PMP community.read more
One of the connections we have made this year is with National Voices, the coalition of charities that stands for people being in control of their health and care. National Voice has drawn our attention to a new report published by Cancer Research UK, ‘Securing a cancer workforce for the best outcomes’.read more
All of us here at Pseudomyxoma Survivor are really saddened by the news that Mr Fulford from the Christie has passed away. On behalf of all of us and our support group members, we pass our condolences to the team on the loss of a man that changed the lives of so many. To quote Mr Aziz, “The world is a poorer place without you, Paul”.read more
From patients and from caregivers
Being relatively new to the group, I just wanted to say how cool I think it is that we are from all over the world and yet we share and are brought together by something so life changing. It is something that bonds us together in a way that shared nationality or age or gender alone never could. I just wanted to let all of you know how much I value knowing you are out there and supporting each other.Linda
Life and its uncertainties are hard enough as a cancer patient but when your income is so low that you don’t have the money to travel to see a cancer specialist, the door of hope and a future for your life is closed to you. That’s what I was facing, but Pseudomyxoma Survivor gave me a financial grant which opened that door for me so I could travel to see my cancer specialist to get the treatment I desperately needed to save my life. They are lifesavers.R
When I was first diagnosed with an appendiceal tumour, I was terrified. All the information I found initially on the Internet talked about awful outcomes, local doctors knew less than I did, and suddenly I was being treated miles from home. I was very pessimistic about the future. When I found this website, suddenly things started looking more hopeful.Sarah
I found this website extremely useful with answering questions when I was first diagnosed with pseudomyxoma peritonei. I am almost a year post diagnosis and I could not of managed without the support, the answers, the love and hugs sent when you’re down. It’s an amazing site and the support group is full of lovely people.Pauline
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Pseudomyxoma Survivor relies solely on donations to carry out the work that we do.
Specialists and surgeons
Our directory is updated with information provided by the specialists themselves and is constantly reviewed.