Pseudomyxoma SurvivorThe support network for those affected by pseudomyxoma peritonei, appendix cancer and peritoneal surface malignancies
We’re a patient and caregiver run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. As well as all this, we’re people you can share experiences with and share the laughter and the tears.
Together we’re stronger and can face anything.
Stories from across the world
We were so happy to receive this box of knitted items from Pseudomyxoma Survivor friend, Margaret. Knitted by Margaret and her friend Marion, they have donated them to Pseudomyxoma Survivor so that we can offer them to you.read more
Pseudomyxoma Survivor is one of over 125 patient organisations that have signed Rare Disease UK’s open letter calling on the Government to review and refresh the UK Strategy for Rare Diseases. The letter has now sent to Baroness Nicola Blackwood, the Minister in charge of rare diseases, and Rare Disease UK have requested a meeting with her to discuss this further.read more
A poem was shared in our support group today which reminds us that some days we can’t put a brave face on it and that’s okay.read more
From patients and from caregivers
Being relatively new to the group, I just wanted to say how cool I think it is that we are from all over the world and yet we share and are brought together by something so life changing. It is something that bonds us together in a way that shared nationality or age or gender alone never could. I just wanted to let all of you know how much I value knowing you are out there and supporting each other.Linda
Life and its uncertainties are hard enough as a cancer patient but when your income is so low that you don’t have the money to travel to see a cancer specialist, the door of hope and a future for your life is closed to you. That’s what I was facing, but Pseudomyxoma Survivor gave me a financial grant which opened that door for me so I could travel to see my cancer specialist to get the treatment I desperately needed to save my life. They are lifesavers.R
I found this website extremely useful with answering questions when I was first diagnosed with pseudomyxoma peritonei. I am almost a year post diagnosis and I could not of managed without the support, the answers, the love and hugs sent when you’re down. It’s an amazing site and the support group is full of lovely people.Pauline
Helping us to help you
Shop with usHave a look at our t-shirts, technical shirts and more in our shop. What will you buy?
We need your supportPseudomyxoma Survivor relies solely on donations to carry out the work that we do.
Specialists and surgeons
Our directory is updated with information provided by pseudomyxoma peritonei and appendix cancer specialists themselves and is constantly reviewed.