Pseudomyxoma SurvivorThe support network for those affected by pseudomyxoma peritonei, appendix cancer and peritoneal surface malignancies
We’re a patient and caregiver run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. As well as all this, we’re people you can share experiences with and share the laughter and the tears.
Together we’re stronger and can face anything.
Stories from across the world
We’ve a number of things that we’d like help with at the moment and we’ll be putting together a fuller description of them all shortly. If you think you can help, please get in touch. If you think there’s something you could do to support those affected by PMP and appendix cancers that we’re not already doing, we’d love to hear from you!read more
This is a great opportunity to gain experience in a very small charity and develop your existing skills and learn new ones.
This voluntary role is what you make it, offering great flexibility to fit around your time and you will mostly manage your own workload from home. It is a requirement that you are available for at least some time during standard UK office hours.
We are now looking for able and motivated individuals to join our Board of Trustees, to help lead and guide our important work. Mainly, we are looking for people who are excited by the work Pseudomyxoma Survivor does, share our values and will play an active part in the work of our Board. Is this you?read more
From patients and from caregivers
Being relatively new to the group, I just wanted to say how cool I think it is that we are from all over the world and yet we share and are brought together by something so life changing. It is something that bonds us together in a way that shared nationality or age or gender alone never could. I just wanted to let all of you know how much I value knowing you are out there and supporting each other.Linda
Life and its uncertainties are hard enough as a cancer patient but when your income is so low that you don’t have the money to travel to see a cancer specialist, the door of hope and a future for your life is closed to you. That’s what I was facing, but Pseudomyxoma Survivor gave me a financial grant which opened that door for me so I could travel to see my cancer specialist to get the treatment I desperately needed to save my life. They are lifesavers.R
I found this website extremely useful with answering questions when I was first diagnosed with pseudomyxoma peritonei. I am almost a year post diagnosis and I could not of managed without the support, the answers, the love and hugs sent when you’re down. It’s an amazing site and the support group is full of lovely people.Pauline
Helping us to help you
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We need your supportPseudomyxoma Survivor relies solely on donations to carry out the work that we do.
Specialists and surgeons
Our directory is updated with information provided by pseudomyxoma peritonei and appendix cancer specialists themselves and is constantly reviewed.