Pseudomyxoma Survivor
The support network for those affected by pseudomyxoma peritonei, appendix cancers and rare peritoneal malignancies
Pseudomyxoma Survivor
The support network for those affected by pseudomyxoma peritonei, appendix cancers and rare peritoneal malignancies
Community
Find out more about our online spaces where you can meet other people affected by pseudomyxoma peritonei, including our private Facebook group.
More about PMP
We share information about pseudomyxoma peritonei. It isn’t like other types of cancer and it can get confusing. We can help with that.
Buddies
A one to one, personal and confidential friend to supplement the support already given by your family, friends and doctors. Our Pseudomyxoma Buddies offer a sympathetic ear and insight from their own experience.
About Us
We offer practical and emotional advice on managing symptoms and all aspects of living with this rare disease, advocate for patients and more.
Articles from across the world
I will support Pseudomyxoma Survivor in any way I can
“Because of my uncertain prognosis, I am keen to make lots of memories with my children, but now have limited income due to my inability to work as many hours as I used to.”
How do you get pseudomyxoma peritonei?
The exact cause of pseudomyxoma peritonei is not known, but it typically starts as a rare type of slow-growing cancer called appendix cancer or mucinous adenocarcinoma of the appendix.
Is pseudomyxoma peritonei curable?
The question we’d all like answered!
From patients and from caregivers
Being relatively new to the group, I just wanted to say how cool I think it is that we are from all over the world and yet we share and are brought together by something so life changing. It is something that bonds us together in a way that shared nationality or age or gender alone never could. I just wanted to let all of you know how much I value knowing you are out there and supporting each other.
Life and its uncertainties are hard enough as a cancer patient but when your income is so low that you don’t have the money to travel to see a cancer specialist, the door of hope and a future for your life is closed to you. That’s what I was facing, but Pseudomyxoma Survivor gave me a financial grant which opened that door for me so I could travel to see my cancer specialist to get the treatment I desperately needed to save my life. They are lifesavers.
When I was first diagnosed with an appendiceal tumour, I was terrified. All the information I found initially on the Internet talked about awful outcomes, local doctors knew less than I did, and suddenly I was being treated miles from home. I was very pessimistic about the future. When I found this website, suddenly things started looking more hopeful.
I found this website extremely useful with answering questions when I was first diagnosed with pseudomyxoma peritonei. I am almost a year post diagnosis and I could not of managed without the support, the answers, the love and hugs sent when you’re down. It’s an amazing site and the support group is full of lovely people.