Pseudomyxoma Buddies
No one really understands quite like someone who has been there themselvesWe set up our Pseudomyxoma Buddies system to supplement the support already given by your family, friends and doctors. A Buddy offers a sympathetic ear and insight from their own experience; someone who is willing support you by sharing their own experience on a one to one basis. This could happen face to face, by email, or by telephone – which ever you and your Buddy agree works the best. Maybe a Buddy can just help you feel less alone, a virtual hand to hold.
What’s a Pseudomyxoma Buddy?
A Pseudomyxoma Buddy is a volunteer who offers support to someone affected by PMP. They know something of what you’re going through because, as survivors or caregivers themselves, they’ve had similar experiences. Everybody in our global network of Buddies is great at listening and will chat with you on a one-to-one basis in person, via email or over the phone. You choose the level and frequency of contact, depending on what suits you.
Why would I want one?
Because living with PMP is hard. We know sometimes it’s tricky to talk to those closest to you because you don’t want to cause them distress. A Pseudomyxoma Buddy adds another layer of support to complement what family, friends and doctors already provide. They help break the loneliness that so many of us endure.
How does it all work?
If you think a Pseudomyxoma Buddy could help, start by sending us and email. Our Buddy Facilitator will get in touch to find out more about you, match you up to a Buddy and arrange your first contact. Just remember that Pseudomyxoma Buddies aren’t health professionals — they’re there to share information and insight from their perspective. For specific medical questions, always speak to your doctor.
Buddies are all survivors or carers, information shared is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.
Want to help?
If you’re a compassionate person who loves nothing more than giving emotional support and letting someone know you care, we’d love to hear from you! You’ll be joining a group of volunteers from all over the world, who readily give up their time — perhaps an hour a week — to help those affected by PMP. Just knowing you’ve made a difference in someone’s life is hugely rewarding. You don’t need any medical knowledge, but if you spot any major issues that might require specialist help, you should be able to point your contact in the right direction.
Still interested? Or know someone else who might be? Email us just the same and we’ll get back to you.
Contact Us
Email: buddies@pseudomyxomasurvivor.org
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