Discover the policies that guide Pseudomyxoma Survivor’s work in supporting individuals with PMP and appendix cancer.
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Acceptable Usage Policy
At Pseudomyxoma Survivor, we’re committed to ensuring and protecting your privacy at any time you are on our website or communicate electronically with us. Our Privacy Policy below provides a detailed explanation of how we can use your personal information provided to us or any we collect.
Biweekly insight on PMP – 10th June 2020
We hope you’ve been keeping well these last couple weeks, and have been keeping safe and well as the coronavirus pandemic wears on.
Pseudomyxoma Buddies
Being able to talk to someone is important; being able to talk one to one to someone who has been in a similar situation is even more valuable.
About us
As well as raising awareness of pseudomyxoma peritonei, Pseudomyxoma Survivor is online global family of both PMP survivors and caregivers. Each day we see firsthand how patient advocacy and peer support helps in a real way. We see people supported both in a group environment, through our Facebook and RareConnect groups, and getting 1:1 support through our buddy scheme.
Contact Pseudomyxoma Survivor
Details about how you can contact Pseudomyxoma Survivor. If you have questions, we’d love to help. We do ask you to be patient, Pseudomyxoma Survivor is staffed purely by volunteers, cancer patients ourselves, so we may not always be able to take your call.
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Pseudomyxoma Survivor is a patient and caregiver-run organisation offering advice on managing symptoms and all aspects of living with pseudomyxoma peritonei (PMP), appendix cancer and other peritoneal surface malignancies. We advocate for patients and we’re people you can share experiences with and share the laughter and the tears.
The doctor suspected that I had kidney stones
I was 59 years old when I was diagnosed with pseudomyxoma peritonei (PMP) and it took me eight months to get a diagnosis. My scan showed a “fog” or liquid around my liver and my spleen.