Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
tagged with #RareDiseaseDay
Rare Disease Day is the official international awareness-raising campaign for rare diseases. Rare Disease Day takes place on the last day of
February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers about rare
diseases and their impact on patients’ lives.
Those of us affected by pseudomyxoma peritonei and appendix cancer are amongst the millions of people affected by rare diseases around the world. As a community, we face huge challenges each and every day. Can you imagine going to multiple doctors who cannot diagnose your condition? Or being told that you aren’t a candidate for the gold standard of treatment for your disease? Or realising available treatment is too expensive? Or finding out that there are no surgeons in your country that can treat you?
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