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Unacceptable Behaviour

We empathise with the stress you may be experiencing and any frustration you feel, however it is imperative that our volunteers are treated with respect while performing their duties.

What behaviour we consider unacceptable

In order to provide you with the best possible help, we will not tolerate any form of aggressive behaviour, including but not limited to:

  • Use of foul language
  • Verbal abuse
  • Discriminatory actions, such as racism, sexism, or homophobia
  • Physical violence or threats of violence

In order to serve all of our service users effectively, we may need to inform you if you are consuming an unreasonable amount of time. This may include instances where you:

  • Continuously make demands in a short period of time
  • Request to speak to a specific staff member when it is not feasible or repeatedly reach out to multiple staff members for different outcomes
  • Continuously switch between issues or bring up unrelated topics
  • Request assistance for matters beyond our scope of advice
  • Persistently bring up the same issue after we have already provided help or when further assistance is not possible
  • Request confidential information that we are unable to share
  • Make excessive complaints without giving us the opportunity to resolve them or make an excessive number of data protection requests.

What we’ll do if your behaviour is unacceptable

We will provide you with an opportuunity to modify your behavior, but if it persists, we may take the following actions:

  • Terminate the conversation
  • Limit the amount of time we spend on the phone with you
  • Cease in-person assistance and only provide support via phone and email
  • Not respond to all of your communications
  • Return letters and documents to you
  • Only assist with specific issues

In extreme cases, we may also:

  • Cease all assistance
  • Contact the police

If we decide to stop helping you

Should we make the decision to discontinue our support, it means that you will no longer have access to the services of Pseudomyxoma Survivor and we may not respond to any of your attempts at contact.

We will offer you an opportunity to alter your behaviour prior to discontinuing our support, unless your behaviour poses a threat to the safety of our staff or others.

We will always make an effort to clearly communicate the reasons for discontinuing our support

Taking the issue outside Pseudomyxoma Survivor

If we decide to stop helping you, you can appeal to the Chair of The Charity. Your case will be reviewed. Should this not be to your satisfaction, you can contact the following bodies, deending on the nature of the issue.

The Fundraising Standards Board

If your complaint is about our fundraising work or activities and you are not satisfied with our response, you are entitled to take it to the Fundraising Standards Board. This is the self-regulatory scheme that works to ensure that organisations raising money from the public do so honestly and properly. As a member of the Fundraising Standards Board, we are committed to abiding by any decision they reach on complaints that are escalated to them. Their contact details are:

Fundraising Standards Board
65 Brushfield Street
London
E1 6AA

Tel: 0333 321 8803

Email: [email protected]

Website: www.frsb.org.uk/complaints/make-a-complaint

Charity Commission

If your complaint is about any other aspect of our charitable work other than our fundraising work or activities, you may wish to contact the Charity Commission. However, we suggest that, before you do so, you consider whether it is appropriate to contact the Commission in the first instance rather than ourselves. The Commission has guidance on its website as to when to direct complaints to a charity and not to the Commission. Their contact details are:

Charity Commission Direct
PO Box 1227
Liverpool
L69 3UG

Tel: 0845 300 0218
Website: www.charitycommission.gov.uk/publications/cc47.aspx
and
www.charitycommission.gov.uk/contact-us/general-enquiries/report-a-concern-about-a-charity

Other Authorities

The Charity Commission guidance to the public states that:

  • if you believe there is criminal activity within a charity, you should inform the police
  • if you suspect fraud connected to a charity, you should report it using the Action Fraud Online Reporting Service at http://www.actionfraud.police.uk/report_fraud or call 0300 123 2040
  • if you have information about possible terrorist activity connected to a charity, you should report it to the Anti-terrorist Hotline on 0800 789 321.

If a complaint relates to your personal data, it may be appropriate to contact the Office of the Information Commissioner.

A complaint could be directed to another regulator where it properly falls under its jurisdiction or remit. For example, a complaint could be made to the Advertising Standard Authority (ASA) where appropriate.

Written by: A Brook
Approved by: S Oliver
February 7th 2023

Review by 31 January 2024