The support network for those affected by PMP, appendix cancer and peritoneal surface malignancies
If you’ve found Pseudomyxoma Survivor, chances are you’ve been affected in some way by pseudomyxoma peritonei (PMP). We’re here to provide emotional support and practical advice, through an online community that’s proven to make a real difference.
We’re a patient-run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. As well as all this, we’re people you can share experiences with and share the laughter and the tears.
Together we’re stronger and can face anything.
Find out more about our online spaces where you can meet other people affected by pseudomyxoma peritonei, including a secret Facebook group.
We share information about pseudomyxoma peritonei. It isn’t like other types of cancer and it can get confusing. We can help with that.
A one to one, personal and confidential friend to supplement the support already given by your family, friends and doctors. A Buddy offers a sympathetic ear and insight from their own experience.
Stories from across the world
Before I was diagnosed, I experienced increased abdominal size and piercing pain which was diagnosed initially with an inflamed appendix. It took about four months and another doctor for me to get the correct diagnosis at the end of January 2014.read more
You may have seen posts on our Facebook page from the Yorkshire Yaks and wondered about the association with Pseudomyxoma Survivor.
Adam is quite simply one of the most amazing people we know – you might have seen his story in the newspapers or on tv recently.read more
I was 35 and had only just embarked on what should have been the most exciting chapter of my life so far. I was living in Australia with my girlfriend Laura, and whilst working on making the most of the hospitality and weather.
But the care-free life we were just starting to enjoy wasn’t to last, and in a devastating turn of fortunes we were faced with a choice that no one should have to consider; life or death.read more
Cancer52 is an alliance of 90 organisations, within the UK, working to address inequality and improve outcomes for patients with highly challenging disease, such as pseudomyxoma peritonei (PMP). 52 percent of UK cancer deaths have been determined to be from the less common cancers (although recent statistics show a likely increase to 54%).read more
From patients and from caregivers
Following my diagnosis with pseudomyxoma peritonei, I couldn’t have coped without the advice, words of wisdom and support from this site and the support group. In my hours of darkness, the support group has been my shining lights leading me forward. Meeting people at our get-togethers and hospital visits and the sharing of others’ visits give a real sense of finding a new family.Emily
Being relatively new to the group, I just wanted to say how cool I think it is that we are from all over the world and yet we share and are brought together by something so life changing. It is something that bonds us together in a way that shared nationality or age or gender alone never could. I just wanted to let all of you know how much I value knowing you are out there and supporting each other.Linda
When I was first diagnosed with an appendiceal tumour, I was terrified. All the information I found initially on the Internet talked about awful outcomes, local doctors knew less than I did, and suddenly I was being treated miles from home. I was very pessimistic about the future. When I found this website, suddenly things started looking more hopeful.Sarah
I found this website extremely useful with answering questions when I was first diagnosed with pseudomyxoma peritonei. I am almost a year post diagnosis and I could not of managed without the support, the answers, the love and hugs sent when you’re down. It’s an amazing site and the support group is full of lovely people.Pauline
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Specialists and surgeons
Our directory is updated with information provided by the specialists themselves and is constantly reviewed.
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