The support network for those affected by PMP, appendix cancer and peritoneal surface malignancies
If you’ve found Pseudomyxoma Survivor, chances are you’ve been affected in some way by pseudomyxoma peritonei (PMP). We’re here to provide emotional support and practical advice, through an online community that’s proven to make a real difference.
We’re a patient-run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. As well as all this, we’re people you can share experiences with and share the laughter and the tears.
Together we’re stronger and can face anything.
Find out more about our online spaces where you can meet other people affected by pseudomyxoma peritonei, including a secret Facebook group.
We share information about pseudomyxoma peritonei. It isn’t like other types of cancer and it can get confusing. We can help with that.
A one to one, personal and confidential friend to supplement the support already given by your family, friends and doctors. A Buddy offers a sympathetic ear and insight from their own experience.
Stories from across the world
Sadly, Audrey Hepburn passed away this day, January 20th in 1993 after being diagnosed with pseudomxyoma peritonei (PMP). All of us at Pseudomyxoma Survivor feel honoured to have Audrey’s, Sean, as our patron and are very grateful for his on-going guidance and support.read more
To attend a conference, where there were 600+ people who not only are aware of my disease but have dedicated their lives to researching and performing operations, through HIPEC, all to help in advancing the search for a cure, was a great honour.read more
When I was 14, I used to lie in bed with this constant nagging pain where my appendix was. Every night, I was convinced that this would be the night it would explode, but it never did. Roll on 25 years and innumerable investigations and potions for IBS, haemorrhoids etc, etc. Nothing ever changed this pain. So I ignored it and got on with life, which largely revolved around being a highly stressed staff nurse and lots of body-damaging fitness (ultra-marathons etc).read more
From patients and from caregivers
Following my diagnosis with pseudomyxoma peritonei, I couldn’t have coped without the advice, words of wisdom and support from this site and the support group. In my hours of darkness, the support group has been my shining lights leading me forward. Meeting people at our get-togethers and hospital visits and the sharing of others’ visits give a real sense of finding a new family.Emily
Being relatively new to the group, I just wanted to say how cool I think it is that we are from all over the world and yet we share and are brought together by something so life changing. It is something that bonds us together in a way that shared nationality or age or gender alone never could. I just wanted to let all of you know how much I value knowing you are out there and supporting each other.Linda
When I was first diagnosed with an appendiceal tumour, I was terrified. All the information I found initially on the Internet talked about awful outcomes, local doctors knew less than I did, and suddenly I was being treated miles from home. I was very pessimistic about the future. When I found this website, suddenly things started looking more hopeful.Sarah
I found this website extremely useful with answering questions when I was first diagnosed with pseudomyxoma peritonei. I am almost a year post diagnosis and I could not of managed without the support, the answers, the love and hugs sent when you’re down. It’s an amazing site and the support group is full of lovely people.Pauline
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Specialists and surgeons
Our directory is updated with information provided by the specialists themselves and is constantly reviewed.
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