The support network for those affected by PMP, appendix cancer and peritoneal surface malignancies
If you’ve found Pseudomyxoma Survivor, chances are you’ve been affected in some way by pseudomyxoma peritonei (PMP). We’re here to provide emotional support and practical advice, through an online community that’s proven to make a real difference.
We’re a patient-run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. As well as all this, we’re people you can share experiences with and share the laughter and the tears.
Together we’re stronger and can face anything.
Find out more about our online spaces where you can meet other people affected by pseudomyxoma peritonei, including a secret Facebook group.
We share information about pseudomyxoma peritonei. It isn’t like other types of cancer and it can get confusing. We can help with that.
A one to one, personal and confidential friend to supplement the support already given by your family, friends and doctors. A Buddy offers a sympathetic ear and insight from their own experience.
Stories from across the world
When Floss and Alan were celebrating their Golden Wedding Anniversary recently, they want to give something back for the support their daughter has received from the charity. Instead of gifts, they asked their friends and family to make a donation and have raised over £500 in aid of Pseudomyxoma Survivor!
Thank you, Floss and Alan and congratulations! The cake looks amazing xxxread more
Most of the talks were interesting and, despite being very specific to particular diseases, there were positive messages that could be applied across the board of rare diseases. What draws us together is the human aspect; the isolation, the struggle for recognition (especially with invisible diseases), the importance of support from loved ones and the belief that we can still be the best we can be despite a disease.read more
The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor. My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor’ so I had to keep explaining that I actually represented an organisation and wasn’t there as a lone survivor of a rare disease!read more
From patients and from caregivers
Following my diagnosis with pseudomyxoma peritonei, I couldn’t have coped without the advice, words of wisdom and support from this site and the support group. In my hours of darkness, the support group has been my shining lights leading me forward. Meeting people at our get-togethers and hospital visits and the sharing of others’ visits give a real sense of finding a new family.Emily
Being relatively new to the group, I just wanted to say how cool I think it is that we are from all over the world and yet we share and are brought together by something so life changing. It is something that bonds us together in a way that shared nationality or age or gender alone never could. I just wanted to let all of you know how much I value knowing you are out there and supporting each other.Linda
When I was first diagnosed with an appendiceal tumour, I was terrified. All the information I found initially on the Internet talked about awful outcomes, local doctors knew less than I did, and suddenly I was being treated miles from home. I was very pessimistic about the future. When I found this website, suddenly things started looking more hopeful.Sarah
I found this website extremely useful with answering questions when I was first diagnosed with pseudomyxoma peritonei. I am almost a year post diagnosis and I could not of managed without the support, the answers, the love and hugs sent when you’re down. It’s an amazing site and the support group is full of lovely people.Pauline
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We need your support
Pseudomyxoma Survivor relies solely on donations to carry out the work that we do.
Specialists and surgeons
Our directory is updated with information provided by the specialists themselves and is constantly reviewed.
Get in touch
Whether you are a patient or a caregiver, a medical professional, a fundraiser or a donor, we would love to hear from you.
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