Giving support to survivors and raising awareness of PMP worldwide

Pseudomyxoma Survivor is the home of the support network for survivors and carers of pseudomyxoma peritonei (PMP), appendix cancer and other peritoneal surface malignancies.

Our support network offers emotional encouragement and a community where fellow patients and caregivers can collaborate online. This allows us to share our stories, enforcing the fact that we are not alone in this fight, as well as further the growing online PMP community. The community has already proven an invaluable source of strength to so many survivors of this rare disease.

 Find out more about the Pseudomyxoma Survivor community - raising awareness of pseudomyxoma peritonei  Find out about the Pseudomyxoma Buddies scheme, helping those affected by pseudomyxoma peritonei Pseudomyxoma Survivor

Community

Our online community is based on Facebook.  Whilst we understand that Facebook is not everybody's cup of tea, we have found it to be a useful forum for our online family.  Our Facebook group is a closed group - only fellow members can see posts.

Buddies

For those that feel they need some extra help, we have our buddy system, Pseudomyxoma Buddies. A Pseudomyxoma Buddy is someone who is willing to share their own experience on a one to one basis with someone else affected with Pseudomyxoma Peritonei. A Pseudomyxoma Buddy complements, rather than replaces, support given by partners, family, friends and healthcare professionals.

Support Us

Help us to support patients and caregivers living with Pseudomyxoma Peritonei.

We know there is still more that is needed to be done. We rely completely on donations and volunteers to help us continue with our work.  There are lots of ways you can help us - you could make a one-off donation, give us some of your time by volunteering or maybe your company might want to support us.

Community ->  Buddies -> Support Us ->

 We now have an online support network of over 1000 people easily contacted through this site and through our online community, all completely free of charge with no subscriptions.  Although this web site is UK-based, we have fellow survivors worldwide in our support forum.

Our help, though our community and buddies, is offered to anyone fighting this disease, be it as patient or loved ones.  Pseudomyxoma Survivor is a registered charity.  As such, in addition to offering emotional support and practical advice on living with PMP and its managing symptoms, our aim is to raise more awareness of this disease.

As survivors and carers, information here is from our perspective - we are not health care professionals.  We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.

     

Supported by Colan | Vopifone | PPS Id Bureau | Original Orange Octopus and SignFirm for banners | Discount Banner Printing for bannersHFE Signs Ltd for PVC banners



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Pseudomyxoma Survivor
Giving support to survivors and raising awareness of PMP worldwide
A registered charity in England and Wales, number 1143642

 

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