Susan met with Ilkley MP, John Grogan, to discuss the work of Pseudomyxoma Survivor and Cancer52. Based on current data, 46 percent of cancers diagnosed are rare and less common, yet they account for 54 percent of cancer deaths.
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases across the world and to their families.
Davina Knight stays positive in the face of one-in-a-million cancer diagnosis and she shared her story with The Morning Bulletin.
An Angus man who suffered from the cancer that took Audrey Hepburn’s life is raising awareness of the disease.
The Scottish Government have developed an Implementation Plan for Rare Diseases in Scotland as part of the UK Strategy for Rare Diseases.
What an amazing week for Pseudomyxoma Survivor's Dawn Green. She has been awarded a special commendation in the "Ambassador of the Year" category of Cancer Research UK's Flame of Hope Awards 2012 and she has contributed to an article about HIPEC in a national...