Susan's representing Pseudomyxoma Survivor at the EURORDIS - European Rare Diseases Organisation General Assembly this...
Eurordis General Assembly 2018
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Raising Awareness articles
MP backs group work on cancer
Susan met with Ilkley MP, John Grogan, to discuss the work of Pseudomyxoma Survivor and Cancer52. Based on current data, 46 percent of cancers diagnosed are rare and less common, yet they account for 54 percent of cancer deaths.
Findacure Rare Disease Showcase, Cambridge
The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor. My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor’ so I had to keep explaining that I actually represented an organisation and wasn’t there as a lone survivor of a rare disease!
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