Join the Pseudomyxoma Survivor Facebook Group
This is for you if you’ve been in some way affected by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support and the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.
You can expect a warm welcome from others and have the opportunity to talk about yourself and your experiences — if you want to. You’re not expected to talk about anything and it can take a few visits before feeling comfortable enough to talk about personal matters.
Our group is free to join and you need to provide your own tea and biscuits It’s not just for PMP cancer support – we support all those affected by PMP, appendix tumours and other rare peritoneal malignancies such as peritoneal mesothelioma. The group is open to boht patients and to caregivers.
We do, of course, welcome donations to the charity but it isn’t a condition of membership.
So if you’re a PMP patient or caregiver and would like some mutual support, please complete this application. The administrators should contact you within 48 hours. Please be patient, we are all volunteers, cancer patients ourselves, so at times it may take us a little longer to respond.
You don’t have to be like or want feelings; you just make room for them and allow them to be there, even if they’re uncomfortable.
I came up with a series of lists because I realized that a lot of people are unsure of what to give or do for a cancer patient but they really want to find a way to help. Some gifts may not feel like gifts but really are very useful. I always appreciate useful.
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’.