Join the Pseudomyxoma Survivor Facebook Group
This is for you if you’ve been in some way affected by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support and the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.
You can expect a warm welcome from others and have the opportunity to talk about yourself and your experiences — if you want to. You’re not expected to talk about anything and it can take a few visits before feeling comfortable enough to talk about personal matters.
Our group is free to join and you need to provide your own tea and biscuits We do, of course, welcome donations to the charity but it isn’t a condition of membership.
So if you’re a PMP patient or caregiver and would like some mutual support, please complete this application. The administrators should contact you within 48 hours. Please be patient, we are all volunteers, cancer patients ourselves, so at times it may take us a little longer to respond.
In 2015, I had cytoreductive surgery and HIPEC for pseudomxyoma peritonei. To thank Pseudomyxoma Survivor for all the support I was given and all the friends I have made through the charity, I’m doing the Southend 10K to raise funds for the charity. I would have been so alone and desperate without the charity and I cannot thank you enough xread more
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a one-stop shop and have all of the tests they require to help with a diagnosis.read more
The BMJ defines evidence-based medicine as:
“the conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients”
It’s a constantly evolving definition and at Pseudomyxoma Survivor, we always look for scientific evidence to back up suggested treatment plans for pseudomyxoma peritonei (PMP) and appendix cancer patients.read more