Join the Pseudomyxoma Survivor Facebook Group
This is for you if you’ve been in some way affected by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface disease. Our support group is a private, secure place to share diagnoses, treatment options, support and the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.
You can expect a warm welcome from others and have the opportunity to talk about yourself and your experiences — if you want to. You’re not expected to talk about anything and it can take a few visits before feeling comfortable enough to talk about personal matters.
Our group is free to join and you need to provide your own tea and biscuits. It’s not just for PMP cancer support – we support all those affected by PMP, appendix tumours and other rare peritoneal malignancies such as peritoneal mesothelioma. The group is open to both patients and to caregivers.
We do, of course, welcome donations to the charity but it isn’t a condition of membership.
So if you’re a PMP patient or caregiver and would like some mutual support, our Facebook ‘Pseudomyxoma peritonei and appendix cancer support‘ group is an active, moderated private support group hosted on Facebook and run by patients.
Please make sure you answer the membership questions when requesting to join the group otherwise your application will timeout.
If you have any questions, you can email us or message us via our Facebook page.
My overnight hospital stay eventually turned out to be 17 nights!
I was informed that I had pseudomyxoma perintonei (the nurse had to write it down for me) and they were referring me to The Christie specialist cancer hospital in Manchester.
What are the statistics for pseudomyxoma peritonei?
It’s estimated that 1 in 2 people in the UK born after 1960 will be diagnosed with some form of cancer during their lifetime. What numbers are there for pseudomyxoma peritonei (PMP)?
Only 3 or 4 people per year are diagnosed with pseudomyxoma peritonei
Late in 2020, I went to A&E with stomach pains. I had a CT scan which showed a mass in my pelvic cavity the size of a grapefruit.