Join the Pseudomyxoma Survivor Facebook Group
This is for you if you’ve been in some way affected by pseudomyxoma peritonei (PMP), appendix cancer or another peritoneal surface disease. Our group is a private, secure place to share diagnoses, treatment options, support and the highs, lows and bits in between. Only fellow members can see you’re in the group and read your posts. And best of all, we all understand what you’re going through.
You can expect a warm welcome from others and have the opportunity to talk about yourself and your experiences — if you want to. You’re not expected to talk about anything and it can take a few visits before feeling comfortable enough to talk about personal matters.
Our group is free to join and you need to provide your own tea and biscuits We do, of course, welcome donations to the charity but it isn’t a condition of membership.
So if you’re a PMP patient or caregiver and would like some mutual support, please complete this application. The administrators should contact you within 48 hours. Please be patient, we are all volunteers, cancer patients ourselves, so at times it may take us a little longer to respond.
After my ruptured appendix was removed, the surgeon said the operation “took a little longer, it was messy in there.” For the follow-up, he called me in earlier to give me the bad news.
As I came to terms with the news, I understood that it would be important for me to get as fit as I could to face such an invasive operation ominously dubbed the “The Mother of all Surgeries” or MOAS.
We hope you’ve been keeping well in lockdown. This is a difficult time for everyone, especially for those of us living with or affected by pseudomyxoma peritonei and other cancers of the appendix. Our online community and Buddies system continue to provide forums of support and understanding, and we hope to see everyone there.