Cancer-associated thrombosis (CAT) survey

Cancer-associated thrombosis (CAT) survey

Can you help build a better understanding of patient awareness about thrombosis? New patient survey launched across Europe (including the UK). People with cancer have a higher than normal risk of developing a blood clot – a condition known as cancer-associated...
I was misdiagnosed by my first surgical oncologist

I was misdiagnosed by my first surgical oncologist

When someone new to the group posts, you very often see multiple members encourage them to seek an appendix cancer specialist. That was also the case when I found the support group after I was diagnosed in June of last year. I was actually misdiagnosed by my first...
MOAS – It’s not a race

MOAS – It’s not a race

Iain Member of our support group I just have to say, getting home from hospital after surgery is not a competition. If you manage to get there quickly, well done you! However, everyone is different, MOAS (mother of all surgeries)* is a very invasive procedure and...
Rare Disease Day 2018

Rare Disease Day 2018

Those of us affected by pseudomyxoma peritonei and appendix cancer are amongst the millions of people affected by rare diseases around the world. As a community, we face huge challenges each and every day. Can you imagine going to multiple doctors who cannot diagnose...
Why you should see a PMP specialist

Why you should see a PMP specialist

I can’t say it enough… are you dealing with a PMP specialist? If not, I would say you must. They are the ones that have seen this stuff and the weird things it does. They can give better ideas as to what to do. I had the whole ovarian cancer scare…...

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