Pressurized intraperitoneal aerosol chemotherapy (PIPAC): a novel treatment for patients with PMP in whom extensive surgery is not possible

all countries, specialist

In patients diagnosed with pseudomyxoma peritonei (PMP), extensive surgical removal of all visible disease (‘debulking’) combined with instillation of heated chemotherapy in the peritoneal cavity (HIPEC) offers the best chance of cure. However, in some patients,...

Dr Jason Spendelow

all countries, medical advisor

Continuing our commitment to supporting those affected by pseudomyxoma peritonei, appendix cancer and other rare peritoneal malignancies, clinical psychologist Dr Jason Spendelow has joined our board of medical advisors. Jason has been a member of our community for...

Expansion Exercise with Dr Jason Spendelow

all countries, appendix cancer, carcinoma of the appendix, low grade mucinous appendiceal neoplasm, mucinous appendiceal adenocarcinoma, multicystic peritoneal mesothelioma, pseudomyxoma peritonei

In our workshops with Dr Jason Spendelow, we’ve been looking at how we can deal with the feelings we have after a diagnosis with pseudomyxoma peritonei (PMP) or appendix cancer. One of the techniques Jason introduced us to is expansion. Expansion means opening...

Jamie’s Gift Lists – Hospital

all countries, survivor's post

When someone is battling cancer, they are usually overwhelmed and a thoughtful, useful gift can make a big difference in their daily life or comfort level. I came up with a series of lists because I realized that a lot of people are unsure of what to give or do for a...

Coronavirus Vaccines

all countries, coronavirus, COVID-19

Pseudomyxoma Survivor has received a number of inquiries as to whether people with a diagnosis of pseudomyxoma peritonei (PMP) or appendix cancer should have a COVID-19 vaccination. There is no evidence to support that people with rare diseases should avoid...

BromAc trial in Spain

all countries, CRS&HIPEC, research, Treatment

Pseudomyxoma peritonei (PMP) is a rare malignant disease characterized by the progressive and multifocal accumulation of abundant mucinous tumour tissue in the peritoneal cavity. It is generally associated with a perforated epithelial neoplasm of the appendix. The...

We’re looking for trustees!

all countries, Trustees, Volunteering

Pseudomyxoma Survivor provides a support network for those affected by pseudomyxoma peritonei (PMP) and appendix cancers. We do this through many ways including our website, our support group, our 1:1 buddy system, family grant scheme, raising awareness and keeping...

Your sexual health after treatment

all countries, Treatment

Intimacy is often a bit of a taboo subject in our society and none more so than after illness. If your doctor spoke with you unprompted about intimacy after surgery for pseudomyxoma peritonei (or PMP) or appendix cancer, then you’re amongst the lucky ones. If...

Extending our emotional support programme

all countries

“the occurrence and development of events by chance in a happy or beneficial way” This is the definition of serendipity (my favorite word of all time, I think I may have mentioned this before…) and lo and behold do we not get a call from an old...