#InRemembrance, #InTheNews, #PatientAdvocacy, #patron, #PseudomyxomaPeritonei, all countries
“It has been 27 years since the world lost a precious human being – an example of humility, elegance, both interior and exterior, and of kindness. This valuable human being was also my mother: She was, and still is, Audrey Hepburn. We sadly lost her to...
#AppendixCancer, #CarcinomaOfTheAppendix, #LowGradeMucinousAppendicealNeoplasm, #MucinousAppendicealAdenocarcinoma, #MulticysticPeritonealMesothelioma, #PseudomyxomaPeritonei, all countries
In our workshops with Dr Jason Spendelow, we’ve been looking at how we can deal with the feelings we have after a diagnosis with pseudomyxoma peritonei (PMP) or appendix cancer. One of the techniques Jason introduced us to is expansion. Expansion means opening...
#Basingstoke, #PseudomyxomaPeritonei, country, Peritoneal Malignancy Institute Basingstoke, Survivor's Story (UK), UK
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’. I had an ultrasound and a large cyst was found. They could not see where...
#AppendixCancer, #diagnosis, #PseudomyxomaPeritonei, all countries, survivor's post
I just re-found this article¹ and while it isn’t specifically about pseudomyxoma peritonei (PMP) or appendix cancer, it is very relevant to everyone diagnosed with any cancer and I remember reading it and that it helped me with where my diagnosis (and two...
#Fundraising, #PseudomyxomaPeritonei, #RaisingAwareness, all countries, Nicky, running for Pseudomyxoma Survivor, Survivor's Story (UK), UK
So, this is my Pseudomyxoma story and I didn’t think I’d be running after cytoreductive surgery and HIPEC… In 2014 I went to my GP, sick of having horrendous periods. As I had ovarian cysts and had fertility treatment, I was sent for an ultrasound...
#PseudomyxomaPeritonei, all countries, survivor's Story, Survivor's Story (USA)
I found out about my cancer in a roundabout way, but when I look back there were signs. I do an exercise class and I was having trouble keeping up and my belly was growing with no changes to my diet. In my head, I was thinking that was just signs of perimenopause and...
#AppendixCancer, #diagnosis, #PseudomyxomaPeritonei, Survivor's Story (USA), USA
On November 30, 2009 Megan went to Northside Hospital, Cherokee, with severe abdominal pain. After hours of testing and exams, she was admitted to do further testing. Megan’s abdomen was swollen to the point that the doctors, had they already not tested for...
#PseudomyxomaPeritonei, Canada, Survivor's Story (Canada)
I was working as a daybaker and would come home and fall asleep on the sofa soon after I got home. I was exhausted and, despite exercising regularly and watching what I was eating, my waist kept expanding over a period of seven months. I also experienced some back...
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