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Only 3 or 4 people per year are diagnosed with pseudomyxoma peritonei

Late in 2020, I went to A&E with stomach pains. I had a CT scan which showed a mass in my pelvic cavity the size of a grapefruit.

We thought it was nothing more than an ovarian cyst

My journey started in October 2013 (I was 53 years old), when I had an ultrasound to determine if I had gallstones or an issue with my gallbladder. The results showed a small cyst and mild fluid in my lower right abdomen area. It was decided that we would monitor the cyst and fluid and have an MRI in one year. We thought it was nothing more than an ovarian cyst. I never thought it would lead to a diagnosis of Mucinous Appendiceal Adenocarcinoma.

This illness sucks but I’m embracing the moment

Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer….

Being sick

The last year and a half has been a profound and unmooring experience, and one I turn over in my mind with gratitude, disbelief, and amazement.

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My stomach looked really distended

When we got home from a family holiday and I looked at the photos, my stomach looked really distended. After noticing this, it just seemed to get worse and felt quite hard. I went to see the Doctor and he said I probably had wind or had just put on weight.

The Waiting is Almost Over!

It’s just two days until my operation but how did I get to this point?

The call came out of the blue. When my gynae consultant’s secretary called, I thought she wanted to say the appointment I had changed was inconvenient. But no, she wanted to ask me to come back in! Even then I wasn’t particularly worried, didn’t really have a clue why…

My waist kept expanding over a period of seven months

I was working as a daybaker and would come home and fall asleep on the sofa soon after I got home. I was exhausted and, despite exercising regularly and when my mother asked me if I was pregnant I began to feel unsettled. I also experienced some back pain that felt like my muscles were torn apart (like Velcro).

I felt uneasy, something was wrong but I couldn’t pin anything down

I had just had blood tests for my quickly approaching 40th but nothing had reared its head. Was I drinking too many coke zeros, at one a day? Time to give them up. Was I lactose intolerant, coeliacs? Nothing like self-diagnosis!

I felt something wasn’t right in my abdomen

I went to the doctor as I could feel a swelling and, yes, the doctor could feel it too. After taking pregnancy test under the doctor’s instruction, I was sent for an ultrasound.

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