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Only 3 or 4 people per year are diagnosed with pseudomyxoma peritonei

Late in 2020, I went to A&E with stomach pains. I had a CT scan which showed a mass in my pelvic cavity the size of a grapefruit.

I was convinced I had gallstones but it wasn’t gallstones

I was convinced I had gallstones but it wasn’t gallstones

After an elderly relative was admitted to hospital with gallstones and, after researching her symptoms online, I was convinced I had the same problem. I pestered my GP to refer me for an ultrasound which eventually showed I had no gallstones, but “a fair amount” of fluid around my liver.

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Receiving a diagnosis

Receiving a diagnosis

My original symptom was an ‘irritated‘ bladder — it is difficult to describe but the closest I can come up with it that it felt like it was vibrating all the time. In March 2010, after several months of bladder discomfort and many trips to my GP, I was referred to the genito-urinary clinic at my local University hospital with suspected bladder prolapse. Eventually, this lead to a diagnosis of pseudomyxoma peritonei (PMP).

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My pseudomyxoma peritonei (PMP) was picked up on an ultrasound scan

My pseudomyxoma peritonei (PMP) was picked up on an ultrasound scan

CT scans showing the cyst getting bigger with each scan and a final scan showing fluid in my pelvis, the doctors thought I had a burst cyst. An MRI scan showed the fluid still there after 2 months where it should have been absorbed by then should it have been a cyst. The Christie Hospital in Manchester where straight away doctors diagnosed it as pseudomyxoma peritonei.

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