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Only 3 or 4 people per year are diagnosed with pseudomyxoma peritonei

all countries, Survivor's Story (UK), UK

Late in 2020, I went to A&E with stomach pains. I had a CT scan which showed a mass in my pelvic cavity the size of a grapefruit.

I thought I had a hernia

all countries, Australia, Survivor's Story (Australia)

John went into hospital for a hernia operation. Afterwards, he was told that it wasn’t a hernia but a ‘small, bloody mass’. The pathology came back as pseudomyxoma peritonei (PMP).

I didn’t have endometriosis, I had PMP

Canada, Survivor's Story (Canada)

My story began a few months after I got married. My first symptom was the sudden onset of intense pain while I was at work one day. After a few hours, the pain subsided but I decided to make an appointment with my family doctor a few days later.

Just when your life is going well, things are sent to mix it all up

Survivor's Story (UK)

Ruth was ignored by her GP until she asked to be referred to a gynaecologist.

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  • Is pseudomyxoma peritonei a cancer?
  • What are some of the factors that can impact the prognosis for PMP?
  • How’s PMP diagnosed?
  • My dad has pseudomyxoma peritonei. Should I have my appendix out?
  • What is the most important prognostic factor for pseudomyxoma peritonei?

Pseudomyxoma Survivor logoPseudomyxoma Survivor is dedicated to supporting those affected by pseudomyxoma peritonei (PMP),
appendix cancer and other peritoneal surface malignancies through practical and emotional support. We also raise awareness and support research.

As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.

Our patron is Sean Hepburn Ferrer, the son of Audrey Hepburn who passed away from appendix cancer.

  • Are you newly diagnosed? Start here
  • How is pseudomyxoma peritonei pronounced?
  • What are tumour markers and what do they mean?
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Pseudomyxoma Survivor is a registered charity in England and Wales, number 1143642

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