tagged with #volunteer

New Year, New Trustee

We’re starting off 2023 with a new trustee. Please join us in welcoming Tim to our board of trustees. He brings a wealth of knowledge and experience that will add value and strength to the team.

What I thought was a stomach bug ended up being a tumour the size of a pineapple

The specialist, Mr Moran, explained that I had pseudomyxoma peritonei. I had never heard of the condition, let alone be able to pronounce it!

What Are Trustees?

Trustees are responsible for making sure the charity is well run, its money is properly managed, and it is achieving its charitable objectives.

Shining a light on our volunteers – Anne

My first event was on a conference stand in Paris for two days, when I tried very hard to avoid saying “pseudomyxoma” as I did not know how to pronounce it!

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Shining a light on our volunteers – Susie

I was more than happy to become a volunteer admin, remembering how important I found the reassurance of the woman I spoke to before my surgery and the help and support I received from the group after it.

Shining a light on our volunteers – Glenn

To be able to chat with others and offer just a tiny virtual hug or an emoji smile can make all the difference. It did for me at a very scary time.

Shining a Light on our Volunteers – Lucie

I’m achieving something here. I matter. I am making a difference. Feeling a useful part of the volunteer team perhaps pays back some of the support I’ve received.

Shining a light on our volunteers – Georgina

I’m keen to show my children that volunteering your time and energy is important and that despite my medical retirement I’m not giving up on my values.

Trustees Week, 16th November

As trustees, we’re volunteers who ultimately take on the legal, strategic and oversight responsibility for the work carried out by Pseudomyxoma Survivor. We take the leadership role in the charity, donating our time to ensure the organisation is sustainable, well managed and delivers impact for the beneficiaries and our PMP community.

Where did we come from?

Launched by Dawn Green in 2011, Pseudomyxoma Survivor works to improve the lives of the living with PMP, as a patient or as a caregiver. Struggling to find support herself, Dawn was keenly aware that there was a lack of emotional support for anyone with the disease. She dedicated the website to the memory of a fellow PMP patient, Julie Stanton.

Just who are we?

You’ve liked our Facebook page, followed us on Twitter, added us to your circles on Google+, subscribed to the blog and read the website (you haven’t? … well, that’s ok [sort of] — but hey, now is a good time to do so, right?).

But just what is Pseudomyxoma Survivor and who are the faces behind the name?