Why you should see a PMP specialist

Why you should see a PMP specialist

I can’t say it enough… are you dealing with a PMP specialist? If not, I would say you must. They are the ones that have seen this stuff and the weird things it does. They can give better ideas as to what to do. I had the whole ovarian cancer scare…...
Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases...
Receiving a diagnosis

Receiving a diagnosis

My original symptom was an ‘irritated‘ bladder — it is difficult to describe but the closest I can come up with it that it felt like it was vibrating all the time. In March 2010, after several months of bladder discomfort and many trips to my GP, I was...
Janesa’s journey with pseudomyxoma peritonei

Janesa’s journey with pseudomyxoma peritonei

The most common question I get asked is “How did you know something was wrong?”. So, here’s the story. I had an exam and a pelvic ultrasound in April of 2011. Everything, including blood work, was normal. I also scheduled a physical around the same time and was told I...

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