all countries, appendix cancer, carcinoma of the appendix, low grade mucinous appendiceal neoplasm, mucinous appendiceal adenocarcinoma, multicystic peritoneal mesothelioma, pseudomyxoma peritonei
In our workshops with Dr Jason Spendelow, we’ve been looking at how we can deal with the feelings we have after a diagnosis with pseudomyxoma peritonei (PMP) or appendix cancer. One of the techniques Jason introduced us to is expansion. Expansion means opening...
Basingstoke, country, Peritoneal Malignancy Institute Basingstoke, pseudomyxoma peritonei, Survivor's Story (UK), UK
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’. I had an ultrasound and a large cyst was found. They could not see where...
all countries, appendix cancer, carcinoma of the appendix, survivor's Story, Survivor's Story (USA), USA
I would never have thought that my “summer flu” symptoms would lead to a diagnosis of carcinoma of the appendix. Late July in 2017, I was spreading mulch around the house with my Dad and my son. Good old Dad manned the gravel rake while Danny was busy...
all countries, multicystic peritoneal mesothelioma, survivor's Story, Survivor's Story (UK)
Every few months I had pain in my left side and then it would disappear. After visiting the doctors several times, I was given a diagnosis of irritable bowel syndrome (IBS). The next time I had pain, four months after my original visit to the GP, it was so bad my...
all countries, appendix cancer, diagnosis, pseudomyxoma peritonei, survivor's post
I just re-found this article¹ and while it isn’t specifically about pseudomyxoma peritonei (PMP) or appendix cancer, it is very relevant to everyone diagnosed with any cancer and I remember reading it and that it helped me with where my diagnosis (and two...
all countries, appendix cancer, fundraising, in the news, supporting Pseudomyxoma Survivor
Georgina Morgan was diagnosed with stage four appendix cancer in August 2018. The town where she lives showed their support by taking part in a walk through Rothbury organised by Sam Davidson, senior manager of Northumbria Primary Care which runs The Rothbury...
all countries, fundraising, Nicky, pseudomyxoma peritonei, raising awareness, running for Pseudomyxoma Survivor, Survivor's Story (UK), UK
So, this is my Pseudomyxoma story and I didn’t think I’d be running after cytoreductive surgery and HIPEC… In 2014 I went to my GP, sick of having horrendous periods. As I had ovarian cysts and had fertility treatment, I was sent for an ultrasound...
all countries, country, diagnosis, patient advocacy
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a...
all countries, diagnosis, research, Treatment
The BMJ defines evidence-based medicine¹ as: “the conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients” It’s a constantly evolving definition and at Pseudomyxoma Survivor, we...
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