All Countries, Fundraising, pseudomyxoma peritonei, Raising Awareness, Running for Pseudomyxoma Survivor, Survivor's Story (UK), UK
So, this is my Pseudomyxoma story and I didn’t think I’d be running after cytoreductive surgery and HIPEC… In 2014 I went to my GP, sick of having horrendous periods. As I had ovarian cysts and had fertility treatment, I was sent for an ultrasound...
All Countries, Country, Diagnosis, Patient Advocacy
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a...
All Countries, Diagnosis, Research, Treatment
The BMJ defines evidence-based medicine¹ as: “the conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients” It’s a constantly evolving definition and at Pseudomyxoma Survivor, we...
appendix cancer, Mucinous Appendiceal Adenocarcinoma, Survivor's Story, Survivor's Story (USA)
My journey started in October 2013 (I was 53 years old), when I had an ultrasound to determine if I had gallstones or an issue with my gallbladder. I never thought it would lead to a diagnosis of Mucinous Appendiceal Adenocarcinoma. The results showed a small cyst and...
All Countries, pseudomyxoma peritonei, Survivor's Story, Survivor's Story (USA)
I found out about my cancer in a roundabout way, but when I look back there were signs. I do an exercise class and I was having trouble keeping up and my belly was growing with no changes to my diet. In my head, I was thinking that was just signs of perimenopause and...
All Countries, appendix cancer, Survivor's Story (USA), USA
When someone new to the group posts, you very often see multiple members encourage them to seek an appendix cancer specialist. That was also the case when I found the support group after I was diagnosed in June of last year. I was actually misdiagnosed by my first...
