#InRemembrance, #InTheNews, #PatientAdvocacy, #patron, #PseudomyxomaPeritonei, all countries
“It has been 27 years since the world lost a precious human being – an example of humility, elegance, both interior and exterior, and of kindness. This valuable human being was also my mother: She was, and still is, Audrey Hepburn. We sadly lost her to...
#AppendixCancer, #CarcinomaOfTheAppendix, #LowGradeMucinousAppendicealNeoplasm, #MucinousAppendicealAdenocarcinoma, #MulticysticPeritonealMesothelioma, #PseudomyxomaPeritonei, all countries
In our workshops with Dr Jason Spendelow, we’ve been looking at how we can deal with the feelings we have after a diagnosis with pseudomyxoma peritonei (PMP) or appendix cancer. One of the techniques Jason introduced us to is expansion. Expansion means opening...
#Basingstoke, #PseudomyxomaPeritonei, country, Peritoneal Malignancy Institute Basingstoke, Survivor's Story (UK), UK
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’. I had an ultrasound and a large cyst was found. They could not see where...
#AppendixCancer, #CarcinomaOfTheAppendix, all countries, survivor's Story, Survivor's Story (USA), USA
I would never have thought that my “summer flu” symptoms would lead to a diagnosis of carcinoma of the appendix. Late July in 2017, I was spreading mulch around the house with my Dad and my son. Good old Dad manned the gravel rake while Danny was busy...
#MulticysticPeritonealMesothelioma, all countries, survivor's Story, Survivor's Story (UK)
Every few months I had pain in my left side and then it would disappear. After visiting the doctors several times, I was given a diagnosis of irritable bowel syndrome (IBS). The next time I had pain, four months after my original visit to the GP, it was so bad my...
#AppendixCancer, #diagnosis, #PseudomyxomaPeritonei, all countries, survivor's post
I just re-found this article¹ and while it isn’t specifically about pseudomyxoma peritonei (PMP) or appendix cancer, it is very relevant to everyone diagnosed with any cancer and I remember reading it and that it helped me with where my diagnosis (and two...
#AppendixCancer, #Fundraising, #InTheNews, all countries, supporting Pseudomyxoma Survivor
Georgina Morgan was diagnosed with stage four appendix cancer in August 2018. The town where she lives showed their support by taking part in a walk through Rothbury organised by Sam Davidson, senior manager of Northumbria Primary Care which runs The Rothbury...
#Fundraising, #PseudomyxomaPeritonei, #RaisingAwareness, all countries, Nicky, running for Pseudomyxoma Survivor, Survivor's Story (UK), UK
So, this is my Pseudomyxoma story and I didn’t think I’d be running after cytoreductive surgery and HIPEC… In 2014 I went to my GP, sick of having horrendous periods. As I had ovarian cysts and had fertility treatment, I was sent for an ultrasound...
#diagnosis, #PatientAdvocacy, all countries, country
Through Cancer 52, Pseudomyxoma Survivor has received a special invitation to view a multi-disciplinary diagnostic centre (MDC) in action. MDCs are being trialled here in the UK and they are set up so that patients who present with non-specific symptoms can go to a...
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