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Estimating the incidence and prevalence of pseudomyxoma peritonei in Europe

all countries, research

Researchers have recently published some new figures on the number of people affected by pseudomyxoma peritonei (PMP) in Europe.¹ The incidence rate, the number of people diagnosed with PMP per million each year, was previously approximated at between one and two....

EuroPMP International Workshop on pseudomyxoma peritonei

all countries, patient advocacy, research, Volunteering

In December, Susan and Angela have been asked to present at the EuroPMP International Workshop on pseudomyxoma peritonei. It is a privilege to be asked to present to this network of experts from many fields, including surgeons, pathologists, oncologists, radiologists,...

ERNs: Lend your support to the UK’s continued involvement

all countries, research

The voice of rare disease patients in Europe, EURORDIS, is supporting the Genetic Alliance UK’s #ProtectERNs campaign that calls on the UK government and the EU to secure the sustained involvement of the UK in European Reference Networks (ERNs) post Brexit. ERNs...

Donate tissue sample – US patients

research, USA

Calling US patients: Do you have an upcoming surgery or an ascites drain scheduled in the United States? If so, please consider donating your excess tissue for an important research project. The ACPMP Research Foundation has partnered with Pattern.org to enable...

An evidence-based approach

all countries, diagnosis, research, Treatment

The BMJ defines evidence-based medicine¹ as: “the conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients” It’s a constantly evolving definition and at Pseudomyxoma Survivor, we...

Gearing up for PSOGI 2018

all countries, in the news, raising awareness, research

The PERITONEAL SURFACE ONCOLOGY GROUP INTERNATIONAL conference (PSOGI2018), now in its 11th year, is almost upon us. I can’t quite believe it’s been two years since we attended the one in Washington DC! PSOGI is a non-profit organisation which aims to...

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