All Countries, Diagnosis, Research, Treatment
The BMJ defines evidence-based medicine¹ as: “the conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients” It’s a constantly evolving definition and at Pseudomyxoma Survivor, we...
All Countries, In the News, Raising Awareness, Research
The PERITONEAL SURFACE ONCOLOGY GROUP INTERNATIONAL conference (PSOGI2018), now in its 11th year, is almost upon us. I can’t quite believe it’s been two years since we attended the one in Washington DC! PSOGI is a non-profit organisation which aims to...
All Countries, In the News, Patient Advocacy, Raising Awareness, Research
Following on from the two successful patient days held at Basingstoke Hospital and The Christie, I have been busy attending meetings with Cancer52, Eurordis, National Voices and I secured a bursary place at the Public Health England Conference in Manchester in June....
All Countries, Patient Advocacy, Research
Requests for patient perspectives in health, research and social policy-making are on the rise as the benefits associated with evidence-based programmes or policies are being increasingly recognised and required by all stakeholders. To best respond to a growing...
All Countries, Coping with PMP, Diagnosis, In the News, Raising Awareness, Research
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases...
