Audrey Hepburn believed that ‘As you grow older, you will discover that you have two hands, one for helping yourself, the other for helping others’ and this is the ethos of Pseudomyxoma Survivor.
A day for remembering
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tagged with #AudreyHepburn
Intimate Audrey
We were invited by our patron, Sean Hepburn Ferrer, to the VIP opening reception of the Intimate Audrey exhibition
Rare Disease Day 2018
Those of us affected by pseudomyxoma peritonei and appendix cancer are amongst the millions of people affected by rare diseases around the world. As a community, we face huge challenges each and every day. Can you imagine going to multiple doctors who cannot diagnose your condition? Or being told that you aren’t a candidate for the gold standard of treatment for your disease? Or realising available treatment is too expensive? Or finding out that there are no surgeons in your country that can treat you?
Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases across the world and to their families.
Remembering Audrey
Sadly, Audrey Hepburn passed away this day, January 20th in 1993 after being diagnosed with pseudomxyoma peritonei (PMP). All of us at Pseudomyxoma Survivor feel honoured to have Audrey’s, Sean, as our patron and are very grateful for his on-going guidance and support.
Liam wanted the legal right to a dignified end
In March 2014, Liam received a diagnosis of pseudomyxoma peritonei, a type of appendix cancer that is rare.
Audrey Hepburn’s son: ‘One day we will find a cure for the cancer that killed my mother’
Our patron, Sean Hepburn Ferrer, tells how his mother had surgery but it was too late to save her.
Angus man helping to raise awareness of PMP cancer
An Angus man who suffered from the cancer that took Audrey Hepburn’s life is raising awareness of the disease.
Brooklyn Park woman fights rare form of cancer
A Brooklyn Park woman is battling the same disease that killed actress Audrey Hepburn. She learned she had the disease three years ago.
Sean Hepburn Ferrer to continue his Rare Disease Day Ambassador role into 2015
Having been appointed as Rare Disease Day Ambassador 2014 following Dawn’s nomination, we are absolutely thrilled to announce that Sean Hepburn Ferrer – our wonderful patron and son of our iconic PMP angel Audrey Hepburn – has been invited by EURORDIS to continue his Rare Disease Day Ambassador role into 2015.
Meet our very first patron, Mr Sean Hepburn Ferrer
We are incredibly excited to announce that we have our very first patron of the charity, following his close involvement with Pseudomyxoma Survivor, Mr Sean Hepburn Ferrer.
The Hepburns
Our little Pseudomyxoma Survivor has recently caught the attention of Sean Hepburn Ferrer, son of the iconic actress Audrey Hepburn.