We are incredibly excited to announce that we have our very first patron of the charity, following his close involvement with Pseudomyxoma Survivor, Mr Sean Hepburn Ferrer.

Pseudomyxoma Survivor announces first patron

Dawn Green and Sean Hepburn Ferrer

Sean has supported us during our early days and through our development and progression into the strong organisation we have grown to become today, pseudomyxoma peritonei survivors are particularly close to his heart as his mother Audrey Hepburn sadly passed away from PMP some 20 years ago. Following his recent successful invitation to become EURORDIS Ambassador of the Year 2014 to represent all rare diseases, we felt that to honour Sean with the title of patron seemed like the most natural progression to further our awareness raising campaign.

We very much look forward to working together, and want to take this opportunity to thank Sean for all of his support thus far.

 

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