Susan Oliver was diagnosed with pseudomyxoma peritonei (PMP), and she underwent surgery to remove the disease. Years after her surgery, Susan became an advocate for PMP awareness and the Chair of Pseudomyxoma Survivor. Grateful thanks to Susan for her continued support, her write ups of conferences and meetings and her crafty ideas as well as the support she shows to patients.
Your fundraising and donations have enabled us to donate to both the Peritoneal Tumour Service at The Christie in Manchester and to the Peritoneal Malignancy Institute at the Basingstoke and North Hampshire Hospital for research trials this year. We are very excited that both trials fit with our charity remit – assisting those with pseudomyxoma peritonei (PMP). Thank you.
The voice of rare disease patients in Europe, EURORDIS, is supporting the Genetic Alliance UK’s #ProtectERNs campaign that calls on the UK government and the EU to secure the sustained involvement of the UK in European Reference Networks (ERNs) post Brexit. How can you help?
One of the connections we have made this year is with National Voices, the coalition of charities that stands for people being in control of their health and care. National Voice has drawn our attention to a new report published by Cancer Research UK, ‘Securing a cancer workforce for the best outcomes’.
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