MOAS – It’s not a race

MOAS – It’s not a race

Iain Member of our support group I just have to say, getting home from hospital after surgery is not a competition. If you manage to get there quickly, well done you! However, everyone is different, MOAS (mother of all surgeries)* is a very invasive procedure and...
Jill’s Book Review

Jill’s Book Review

I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
This Illness Sucks but I’m Embracing the Moment

This Illness Sucks but I’m Embracing the Moment

Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles  My first scan is in March and I...
MP backs group work on cancer

MP backs group work on cancer

Pseudomyxoma Survivor’s Susan met with Ilkley MP, John Grogan, to discuss the work of Pseudomyxoma Survivor and Cancer52, an alliance of 95 predominantly small cancer charities united by their vision of seeking a better future for everyone affected by rare and...
Golden Wedding Celebrations

Golden Wedding Celebrations

When Floss and Alan were celebrating their Golden Wedding Anniversary recently, they want to give something back for the support their daughter has received from the charity. Instead of gifts, they asked their friends and family to make a donation and have raised over...

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