all countries, coronavirus, COVID-19, patient advocacy, UK
Pseudomyxoma Survivor is immensely proud to be a member of Cancer52. Cancer52 represents predominantly small patient support group cancer charities such as ourselves and by coming together, we aim to promote improved diagnosis, treatment and support for those affected...
Basingstoke, country, Peritoneal Malignancy Institute Basingstoke, pseudomyxoma peritonei, Survivor's Story (UK), UK
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’. I had an ultrasound and a large cyst was found. They could not see where...
all countries, coping with PMP, France, fundraising, survivor's Story, Survivor's Story (UK), Switzerland, UK
I was a healthy 43 years old going about my business when in August 2014 I was rushed to hospital with a burst appendix. I had been suffering from bowel pain on and off for at least 2 years and assumed I had an irritable bowel so it was a relief to finally have my...
all countries, UK, Volunteering
In this National Volunteers Week, I was asked “Why do I volunteer?’” Having been working full time for many years I dropped down to part-time but wanted to keep my brain active and also give something back. I considered several things but in particular, I...
all countries, UK, Volunteering
Following diagnosis in 2013 I was on watch and wait for two years before needing surgery in April 2015. In the few weeks leading to surgery, I confided in a friend of my nerves. She looked up cytoreductive surgery on the internet and immediately came across an article...
all countries, UK, Volunteering
Not being a straightforward pseudomyxoma peritonei (PMP) patient, I started life out as a supposed irritable bowel syndrome sufferer, how wrong! Turns out I had bowel cancer. After receiving chemo after an emergency operation in August 2016, a small liver lesion...
all countries, UK, Volunteering
I’m tremendously grateful that my first experience of the charity and online community of Pseudomyxoma Survivor was with a most wonderful volunteer. It was nine months following a pseudomyxoma peritonei (PMP) diagnosis and six months following surgery. In those...
all countries, coronavirus, COVID-19, UK
When word was spreading that coronavirus may happen and schools might close, I was still very much living in a fog of grief. I lost my husband 12 months ago after caring for him for 10 years. He was 41. I had got used to living day to/by day and by that I mean just...
all countries, LLHM, running for Pseudomyxoma Survivor, survivor's Story, Survivor's Story (UK), UK
I am a Pseudomyxoma Survivor! I was diagnosed in May 2018 and underwent life changing surgery and chemotherapy. From that moment I knew my life would be different and I wanted to make the best of every moment I have. So…. I set myself some goals and...
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