Cancer-associated thrombosis (CAT) survey

Cancer-associated thrombosis (CAT) survey

Can you help build a better understanding of patient awareness about thrombosis? New patient survey launched across Europe (including the UK). People with cancer have a higher than normal risk of developing a blood clot – a condition known as cancer-associated...
MP backs group work on cancer

MP backs group work on cancer

Pseudomyxoma Survivor’s Susan met with Ilkley MP, John Grogan, to discuss the work of Pseudomyxoma Survivor and Cancer52, an alliance of 95 predominantly small cancer charities united by their vision of seeking a better future for everyone affected by rare and...
Lisa takes part in a photoshoot

Lisa takes part in a photoshoot

Following the Loose Women Body Stories campaign, Lisa took part in a photo shoot organised by The Sun newspaper. We caught up with her and talked to her about the shoot. PMPS: Hi Lisa, why did you want to take part in the photo shoot? Lisa: I did it for a couple of...
Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day 2017, Research, Audrey Hepburn, Sean and us

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases...
Merry Christmas!

Merry Christmas!

It’s been a very long year for the team at Pseudomyxoma Survivor Towers. We’ve seen lots of new members join the support groups and we’ve lost some very special members too. The same applies to our team, we’ve extended the board of trustees...

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