all countries, in the news, media
Hundreds of patients in Northumberland have come together to show support for their local GP after she was diagnosed with a rare form of cancer. ...
all countries, appendix cancer, fundraising, in the news, supporting Pseudomyxoma Survivor
Georgina Morgan was diagnosed with stage four appendix cancer in August 2018. The town where she lives showed their support by taking part in a walk through Rothbury organised by Sam Davidson, senior manager of Northumbria Primary Care which runs The Rothbury...
all countries, in the news, raising awareness
We were invited by our patron, Sean Hepburn Ferrer, to the VIP opening reception of the Intimate Audrey exhibition. Intimate Audrey is an exhibition on the life of Audrey Hepburn created by her son, Sean, to celebrate her 90th birthday anniversary in her birth town of...
all countries, in the news, raising awareness, research
The PERITONEAL SURFACE ONCOLOGY GROUP INTERNATIONAL conference (PSOGI2018), now in its 11th year, is almost upon us. I can’t quite believe it’s been two years since we attended the one in Washington DC! PSOGI is a non-profit organisation which aims to...
all countries, in the news, patient advocacy, raising awareness, research
Following on from the two successful patient days held at Basingstoke Hospital and The Christie, I have been busy attending meetings with Cancer52, Eurordis, National Voices and I secured a bursary place at the Public Health England Conference in Manchester in June....
all countries, in the news
Can you help build a better understanding of patient awareness about thrombosis? New patient survey launched across Europe (including the UK). People with cancer have a higher than normal risk of developing a blood clot – a condition known as cancer-associated...
in the news, raising awareness, UK
Pseudomyxoma Survivor’s Susan met with Ilkley MP, John Grogan, to discuss the work of Pseudomyxoma Survivor and Cancer52, an alliance of 95 predominantly small cancer charities united by their vision of seeking a better future for everyone affected by rare and...
all countries, coping with PMP, in the news, media, Survivor's Story (UK), UK
Following the Loose Women Body Stories campaign, Lisa took part in a photo shoot organised by The Sun newspaper. We caught up with her and talked to her about the shoot. PMPS: Hi Lisa, why did you want to take part in the photo shoot? Lisa: I did it for a couple of...
all countries, coping with PMP, diagnosis, in the news, raising awareness, research
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases and the theme for this year is research. Research is key as it brings hope to the millions of people living with pseudomyxoma peritonei (PMP) and other rare diseases...
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