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Keep in touch with what is going on at Pseudomyxoma Survivor.  If you have something you wish to share, please do not hesitate to contact us.

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  1. The Marathon Challenge continues!  SJulie's 2013 PMP Marathon Challengeome of our supporters have been around the board already and have now started on a second challenge.  How awesome is that? 

    It's not too late for you to join in, please see the Marathon Challenge page for details of how you can take part.  A big thank you to Julie who is doing an amazing job co-ordinating all of this... and she still has that all important run to do on the big day!

    http://www.justgiving.com/teams/pmpmarathonchallenge

     

  2. Lynne shares her story with us:

    Survivor Lynne shares her story with Pseudomyxoma SurvivorSurvivor Lynne shares her story with Pseudomyxoma SurvivorBefore I was diagnosed, I suffered from abdominal pain and tiredness.  I felt full quickly after only eating small amounts.  I saw various doctors who gave me a diagnosis between appendix, ovaries and bowel but no firm diagnosis.  Eventually, the colorectal doctor forwarded my CT scan on to the Basingstoke and North Hampshire hospital after I complained of pain in abdomen after jogging.

    I have had my appendix removed and my right ovary so tumour removed from there. I have had no further treatment so far and am currently on watch and wait.

    After receiving a cancer diagnosis, I was devastated at first as I am a single parent and the thought of not being there for my daughter was worse than thinking about what surgery lay ahead of me. I was angry also as just two weeks earlier had just found out I had passed my nursing degree.  Now though I have learned to take one day at a time and stop worrying about the future so much.  I just enjoy time now whilst I am fit and healthy.

    Survivor Lynne shares her story with Pseudomyxoma SurvivorMy advice to others would be don't read too much on the internet as each case is different and you will only scare yourself, enjoy life as we are only here once and talk about your feelings - don't let things build up.

    To read more stories like Lynne's, please visit our Survivors' Stories page.

  3. Megan shares her story with Pseudomyxoma Survivor

    Megan and her husband Brian, from our support group, share her story:

    Megan shares her story with Pseudomyxoma SurvivorOn November 30, 2009 Megan went to Northside Hospital, Cherokee, with severe abdominal pain.  After hours of testing and exams, she was admitted to do further testing.  Megan's abdomen was swollen to the point that the doctors, had they already not tested for pregnancy, said that she looked to be approximately five to six months pregnant.

    Megan was diagnosed as having Stage 3c Ovarian Cancer.  The tumors were large mucinous tumors.  Megan was referred to Dr. Joseph Boveri, a gynaecological oncologist in Atlanta, to follow-up and to get this tumor removed.  

    On December 11, 2009 at 2:33pm, Megan underwent a six and a half hour debulking surgery at St. Joseph's Hospital which included removal of the tumors, appendix, omentum, complete hysterectomy and exploratory surgery on her bowels and other organs to confirm if the cancer had spread to those as well.  Her incision was from her right hip to left hip.  It took 57 staples to close the incision.  Dr. Boveri came out after the surgery and explained to the family that it was cancer, however, depending on what the pathology reports revealed, that he thought the primary cancer started out as appendix cancer...

    On January 10, 2009, Megan went back to St. Josephs to have a port implanted for ease of use during chemo.  

    The pathology reports finally came back and concluded that indeed it was not Ovarian Cancer, but Stage 4b Appendix Cancer with Psuedomyxoma Peritonei (PMP).  This type of cancer is a gastrointestinal (GI) cancer, but does not usually response to systemic (IV) chemo as it does not have good blood supply.  

    On February 10, 2010, Megan endured yet another debulking surgery at DeKalb Medical Center under the care of Dr. Michael Quinones.Megan shares her story with Pseudomyxoma Survivor  Assisted by Dr. Boveri, Dr. Q went into Megan's body through an incision from her sternum down to her waist and removed three more tumors that had grown to date.  Then heated chemo (HIPEC) was poured directly into Megan's abdomen.  This is supposed to take care of the cancer in the abdomen as well as reduce side effects.  The dose is 4 to 400 times higher than that of a regular chemo treatment because not much of the chemo is adsorbed into the bloodstream.  This surgery lasted about four hours and Megan recovered in the hospital for a week before being sent home.

    - Megan and Brian

    To read more stories like Megan's, please visit our Survivors' Stories page.