I was misdiagnosed by my first surgical oncologist

I was misdiagnosed by my first surgical oncologist

When someone new to the group posts, you very often see multiple members encourage them to seek an appendix cancer specialist. That was also the case when I found the support group after I was diagnosed in June of last year. I was actually misdiagnosed by my first...
Jill’s Book Review

Jill’s Book Review

I have had ME/chronic fatigue and Fibromyalgia for about 12-13 years. I was diagnosed with low-grade PMP (pseudomyxoma peritonei) in February 2016 which I had probably for 10 years. I had my cytoreductive surgery and HIPEC in May 2016 and was in the North Hampshire...
Why you should see a PMP specialist

Why you should see a PMP specialist

I can’t say it enough… are you dealing with a PMP specialist? If not, I would say you must. They are the ones that have seen this stuff and the weird things it does. They can give better ideas as to what to do. I had the whole ovarian cancer scare…...
This Illness Sucks but I’m Embracing the Moment

This Illness Sucks but I’m Embracing the Moment

Just over 18 months ago, I had a full hysterectomy because they thought I had ovarian cancer…. almost 10 months ago I had MOAS* and in October I had my ileostomy reversed….. today I ran for the third week – 1.9 miles  My first scan is in March and I...

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