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In memory of Georgina Morgan

The current climate has presented us with many issues and one of the greatest concerns is not many of us have visited a hospital for care during the COVID-19 pandemic. Given the significant disruption that COVID-19 caused to cancer diagnosis and treatment, combined with the changing shielding guidelines and as part of our continuing support of Cancer 52, we wanted to take part in a video to help put patients’ minds at ease if they were asked to go to hospital for treatment. We are also very pleased that Professor Peter Johnson, NHS England’s National Clinical Director for Cancer, took part.

I’m delighted that the video Cancer patients talk about their care has now been created featuring Pseudomyxoma Survivor trustee, Georgina. Please watch it and share it where you can as it is extremely important that this message is conveyed as much as possible at this time, not least for rare cancer patients.

If you have any signs or symptoms that are a matter of concern to you, we urge you to contact your doctor as soon as you can. Cancer doesn’t wait for a global pandemic to finish.

Susan
Chair
Pseudomyxoma Survivor

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The charity Findacure recently organised a Rare Disease Showcase in Cambridge, and I attended as a representative of Pseudomyxoma Survivor.  My only slight problem was that my badge simply said ‘Pseudomyxoma Survivor’ so I had to keep explaining that I actually represented an organisation and wasn’t there as a lone survivor of a rare disease!

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