“Because of my uncertain prognosis, I am keen to make lots of memories with my children, but now have limited income due to my inability to work as many hours as I used to.”
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tagged with #pseudomyxomaperitonei
Who does PMP affect?
Most studies show that PMP affects men and women almost equally. The average age at diagnosis 54.
How do you get pseudomyxoma peritonei?
The exact cause of pseudomyxoma peritonei is not known, but it typically starts as a rare type of slow-growing cancer called appendix cancer or mucinous adenocarcinoma of the appendix.
The rare ‘jelly belly’ condition that killed Audrey Hepburn
Audrey Hepburn, the Hollywood golden age film and fashion icon, was diagnosed with a rare form of cancer called pseudomyxoma peritonei (PMP).
New York father approved for rare ‘multi-visceral’ organ transplant
Anthony of New York City, was diagnosed with the rare cancer pseudomyxoma peritonei (PMP) in August of 2020.
Dr Aditi Bhatt
Aditi Bhatt is an Indian surgical oncologist who specializes in the
management of primary peritoneal malignancies and secondary peritoneal metastases of gastrointestinal and gynecological origin.
Just how rare is PMP?
PMP is identified by Eurordis as a rare or “orphan” disease (one which affects less than 1 in 2000 people).
A day for remembering
Audrey Hepburn believed that ‘As you grow older, you will discover that you have two hands, one for helping yourself, the other for helping others’ and this is the ethos of Pseudomyxoma Survivor.
I was shocked by my pseudomyxoma peritonei diagnosis
Being diagnosed with pseudomyxoma peritonei (or PMP) came as a huge shock. It was discovered accidentally as my usual yearly bloods showed abnormalities.
Can we stop tumour growth in PMP?
Faheez Mohammed from the Peritoneal Malignancy Institute in Basingstoke explains the preliminary results of the GNAS trial and what it could mean for patients.
Meet trustee Clare
I became a trustee for Pseudomyxoma Survivor this year. I really wanted to do something positive after being diagnosed with a recurrence in 2020.
Meet Alison, one of our trustees
It’s Trustees’ Week from 1st-5th November 2021 and we’re hoping to give you an idea what it’s like to be a trustee with Pseudomyxoma Survivor. Alison shares her experiences of becoming a trustee with Pseudomyxoma Survivor