Some of you may already know that I was recently invited as a guest speaker at a conference hosted by the Canadian Organisation for Rare Disorders (CORD) in Toronto. This was a wonderful opportunity to raise awareness of PMP and to network with other patient advocates for rare disorders. I also got the chance to meet some fellow PMP survivors which was an amazing experience these guys had to be the nicest people I have ever had the pleasure of meeting.

To find out more about CORD, please visit their website.

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