Kay
My pseudomyxoma peritonei (PMP) was discovered during a proctocolectomy¹ for what was thought to be an uncontrollable flare-up of Ulcerative Colitis. This turned into surgery to remove everything the mucin had touched in May 2001. I received heated chemotherapy during surgery ten days later. My surgeries were at Ashford Hospital, Adelaide and my surgeon was Professor Peter Hewett. My pathology was appendiceal mucosa cystadenoma presenting as pseudomyxoma peritonei.
– Kay
Proctocolectomy
A proctocolectomy is an operation where the rectum and all or part of the colon is removed.
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Jill’s Book Review
I was really positive about my recovery after the major operation for pseudomyxoma peritonei (PMP). I took things really slowly and took good care of myself.
Don’t let a cancer diagnosis mean waiting and delaying become habits
Following a major operation in September to remove my left ovary, a cyst, my appendix and litres of mucinous jelly from my abdomen, in November I received the horrible news that I definitely had cancer. We didn’t know which cancer, whether it was mucinous ovarian cancer or pseudomyxoma peritonei (or PMP). I was told we could wait several months for a final diagnosis.
Why you should see a PMP specialist
I can’t say it enough… are you dealing with a PMP specialist? If not, I would say you must.
They are the ones that have seen this stuff and the weird things it does. They can give better ideas as to what to do.
In my case, waiting seemed the best option at the time but with the specialist’s input, I chose to go ahead and now, even with the debt, the new body norms and everything, I am sooooo glad I followed his advice! He would have told me to watch and wait if in his experience there was a low risk. And I would have done it.