I don’t like running. I never have! I find it quite dull, BUT, give me some motivation and a challenge and I’ll do it!
Stacey’s Local Landmarks Challenge
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A Joint message from the PMI and CPOC
Here at Pseudomyxoma Survivor, we are doing as much as we can to support us all in the current climate.
As patients ourselves, we were concerned that treatment and monitoring may be affected as our specialists are supporting COVID-19 patients.
Fundraising and Donations update
Your fundraising and donations have enabled us to donate to both the Peritoneal Tumour Service at The Christie in Manchester and to the Peritoneal Malignancy Institute at the Basingstoke and North Hampshire Hospital for research trials this year. We are very excited that both trials fit with our charity remit – assisting those with pseudomyxoma peritonei (PMP). Thank you.
Angus man helping to raise awareness of PMP cancer
An Angus man who suffered from the cancer that took Audrey Hepburn’s life is raising awareness of the disease.
Receiving a diagnosis
My original symptom was an ‘irritated‘ bladder — it is difficult to describe but the closest I can come up with it that it felt like it was vibrating all the time. In March 2010, after several months of bladder discomfort and many trips to my GP, I was referred to the genito-urinary clinic at my local University hospital with suspected bladder prolapse. Eventually, this lead to a diagnosis of pseudomyxoma peritonei (PMP).
My pseudomyxoma peritonei (PMP) was picked up on an ultrasound scan
CT scans showing the cyst getting bigger with each scan and a final scan showing fluid in my pelvis, the doctors thought I had a burst cyst. An MRI scan showed the fluid still there after 2 months where it should have been absorbed by then should it have been a cyst. The Christie Hospital in Manchester where straight away doctors diagnosed it as pseudomyxoma peritonei.
Susan, Cancer 52 and the House of Lords
I don’t know what has come over me recently but I am just starting to raise my head above the parapet. Which, considering I was first diagnosed in 2003, does make you wonder what I’ve been doing in between my 6 operations (MOAS in 2009), 3 rounds of chemo, radiotherapy, rounds of IVF and — oh, yes — that ‘miracle baby’ who is now 6 years old and in full teenage strop mode.
Cancer 52 meeting
Did you know that the percentage of patients diagnosed with a rarer or less common cancer in the UK is now 53%? No, I didn’t either until I went to the latest Cancer 52 meeting at the House of Lords.
I thought I had a kidney infection
I feel great. I was worried about catching colds and things without my spleen but I’m as healthy as I was before. My son and husband have caught colds but I have not which is normal for us. I have caught a sickness bug from my son since surgery but I recovered quickly with no problems and again compared to what I’ve been through, it felt like nothing.
Sent for ultrasound for possible hernia
For well over a year, I noticed my belly steadily getting bigger though I didn’t seem to be eating any more than normal. I of course tried dieting a few times but when I didn’t lose weight I gave up pretty quickly!
40 for 40
We have been best friends for more years than we care to remember, we have laughed, cried and supported each other through the good, the bad and often the ugly. This year we plan to celebrate our 40th birthdays in style by raising money for Pseudomyxoma Survivor, a...
My stomach looked really distended
When we got home from a family holiday and I looked at the photos, my stomach looked really distended. After noticing this, it just seemed to get worse and felt quite hard. I went to see the Doctor and he said I probably had wind or had just put on weight.