Eurordis
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.
Late in 2020, I went to A&E with stomach pains. I had a CT scan which showed a mass in my pelvic cavity the size of a grapefruit.
We’re registered with Recycle 4 Charity who will make us a donation for your empty printer ink cartridges.
Hepburn died from appendiceal cancer, in Tolochenaz, Switerzland, on January 20, 1993. Hepburn suffered from “pseudomyxoma peritonei”.
A subject we don’t discuss enough. Karen believed people should control their own deaths. Facing terminal cancer, she lived to define her own ending.
One of the questions we get asked a lot and features heavily in our support groups is “What do I need to bring into hospital with me?”.
Treating pseudomyxoma peritonei and appendix cancers can be challenging.
Michelle’s friend Debs to developed pseudomyxoma peritonei (PMP), a rare type of cancer also known as “jelly belly.”
Diagnosing appendix cancer can be difficult due to the lack of effective screening tests and the general nature of the symptoms.