Is pseudomyxoma peritonei curable?
The question we’d all like answered!
Fundraising Regulator
The independent regulator of charitable fundraising in England, Wales and Northern Ireland.
Rare Disease UK
Rare Disease UK is the national campaign for people with rare diseases and all who support them.
My overnight hospital stay eventually turned out to be 17 nights!
I was informed that I had pseudomyxoma perintonei (the nurse had to write it down for me) and they were referring me to The Christie specialist cancer hospital in Manchester.
What are the statistics for pseudomyxoma peritonei?
It’s estimated that 1 in 2 people in the UK born after 1960 will be diagnosed with some form of cancer during their lifetime. What numbers are there for pseudomyxoma peritonei (PMP)?
What’s MOAS?
MOAS is an abbreviation for the term the “Mother of All Surgeries” and refers to CRS and HIPEC.
CORD
CORD is Canada’s national network for organizations representing all those with rare disorders. Pseudomyxoma Survivor is a member.
RareConnect
Pseudomyxoma Survivor is the founding organisation of RareConnect’s PMP community.
Eurordis
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe.