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I was experiencing shortness of breath and my sides ached when walking around, nothing specific. I had an ultrasound which showed a large tumour which was confirmed by MRI. I had surgery at my local hospital to remove a tumour the size of a football and my diagnosis of pseudomyxoma peritonei (PMP) was confirmed.

Around 18 months later, after tumours had started to reappear, I went to Froedtert and Dr Samuel Pappas carried out a full cytoreduction and HIPEC¹. When Dr Pappas left Froedtert for another position, my case was turned over to Dr Turaga.  Both wonderful doctors. There isn’t a history of cancer in my family and I certainly hadn’t heard of PMP or appendix cancer before. I was lucky that I had my friends and family as my primary support. I had a ‘go, get it‘ attitude. This whole thing was hardest on my children. They were worried about their primary support person (emotionally and financially) possibly not surviving.

As someone who has survived for over six years, I want to assure others that it is possible to recover and lead a fulfilling life after a diagnosis of pseudomyxoma peritonei (PMP). While my recovery was challenging, I fortunately didn’t experience many of the common complications associated with PMP. My advice to others is to seek out a specialist as soon as possible, as it may prevent the need for multiple surgeries. It’s important to maintain a positive attitude throughout the journey. I highly recommend a website that provides a comprehensive summary of information on PMP, which can be a valuable resource for individuals and their loved ones.

Carol

#CRS/HIPEC, #CytoreductiveSurgery, #HIPEC, #HIPECProcedure, #HIPECSurgery
HIPEC

HIPECHeated IntraPEritoneal Chemotherapy: heated chemotherapy, delivered directly into the abdomen, after complete cytoreduction. 

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