Facebook pixel

Every few months I had pain in my left side and then it would disappear. After visiting the doctors several times, I was given a diagnosis of irritable bowel syndrome (IBS). The next time I had pain, four months after my original visit to the GP, it was so bad my husband took me to hospital. I was admitted and after a scan, they said it was pseudomyxoma peritonei or PMP.

But it wasn’t.

I was referred to The Christie Hospital in Manchester where after cytoreductive surgery and HIPEC, the histology report revealed I have benign multicystic peritoneal mesothelioma. I went home two weeks after surgery and didn’t have any further chemotherapy. Although I’ve recovered from the operation, I suffer a great deal with pain from scar tissue pain, and rib and back pain too. Looking at my scarred body was, for me, the greatest adjustment after surgery.

So little is known about this cancer and I’m sharing my story in the hope that I can find someone else with the same diagnosis.

~ B

#ColorectalAndPeritonealOncologyCentre, #multicysticperitonealmesothelioma, #peritonealmesothelioma

In case you missed it...

I thought I had a hernia

I thought I had a hernia

John went into hospital for a hernia operation. Afterwards, he was told that it wasn’t a hernia but a ‘small, bloody mass’. The pathology came back as pseudomyxoma peritonei (PMP).

read more
Feeling proud

Feeling proud

My 10-year-old son has recently been to pioneer week where he goes to his new secondary school for a week to experience life there. He was asked to write about someone who inspires them.

read more
How shall I tell my children that I have appendix cancer?

How shall I tell my children that I have appendix cancer?

Looking back, I think we were trying to protect our children from the reality of the disease. Initially, when we discussed my diagnosis, we used terms like death, dying, chemo and cancer. We thought we spun this into a very positive approach, but our “method” may have given our children a confusing and unrealistic message about survival instead.

read more
I was diagnosed with pseudomyxoma peritonei, but it wasn’t