Every few months I had pain in my left side and then it would disappear. After visiting the doctors several times, I was given a diagnosis of irritable bowel syndrome (IBS). The next time I had pain, four months after my original visit to the GP, it was so bad my husband took me to hospital. I was admitted and after a scan, they said it was pseudomyxoma peritonei or PMP.
But it wasn’t.
I was referred to The Christie Hospital in Manchester where after cytoreductive surgery and HIPEC, the histology report revealed I have benign multicystic peritoneal mesothelioma. I went home two weeks after surgery and didn’t have any further chemotherapy. Although I’ve recovered from the operation, I suffer a great deal with pain from scar tissue pain, and rib and back pain too. Looking at my scarred body was, for me, the greatest adjustment after surgery.
So little is known about this cancer and I’m sharing my story in the hope that I can find someone else with the same diagnosis.
Other survivors stories you might like to read
Oh, there’s an issue with your appendix. We’ll need to get another surgeon across to remove your appendix. There seems to be a tumour-like growth on your appendix and there is mucous leaking around your abdomen.”
I am so grateful for the grant from Pseudomyxoma Survivor which I received. It has helped me financially during such a difficult time.
For me, it all started with blood in my urine and an increase in the size of my stomach. In retrospect, I could feel the mucin moving when I walked. Now I’m on ‘watch and wait’.