I didn’t have any related symptoms before my diagnosis. I went to the urologist for some UTI treatment. The doctor (my hero) ordered a CT scan. That was the beginning of my journey. This scan showed a hot spot and four days later, the surgeon removed my app
endix and the cancer diagnosis was given. I am a rough and tough retired NYPD lieutenant. This diagnosis was such a shock and life-changing. I guess no one ever expects to hear the ‘C’ word but when you do it changes your life forever. I was a mess. I’m getting better now but I know I have post-traumatic stress disorder (PTSD).
After the appendectomy in my local hospital, my daughter and sister and my wife started their research to find a doctor who was knowledgeable about pseudomyxoma peritonei (PMP). That search found Dr Pingpank of the Hillman Cancer Center in Pittsburgh in Pennsylvania. We flew to Pittsburgh in early December 2016 to meet the doctor and have a consult. The doctor had studied with Dr Sugarbaker, who was one of the doctors that created cytoreductive surgery and HIPEC* as the treatment for PMP. The mother of all surgeries was scheduled for January 20th, 2017. To say the surgery was rough is an understatement. It was challenging. HIPEC was done during the 10-hour surgery. Resection and gallbladder removal and debulking. No other chemo was ordered.
PMP is so rare and the right treatment is so important. You have to do research just to find the right medical team that is experienced in treating PMP. My wife and family, of course, were there for me. Now I am searching for a way to get on with life including by joining the support group. It’s great to hear that I’m not the only one who feels the way I do. You always feel so isolated and the group and the stories of other survivors really helps.
I’m getting stronger every day physically. I put on a few pounds and the feeling of tightness in my abdomen has subsided. I did have a few infections in the suture line and needed same-day surgery to take care of it. Otherwise, I resumed exercising and feeling a lot better.
– Marty
*HIPEC – Hyperthermic (heated) intraperitoneal chemotherapy
In case you missed it...
The radiologist was rather puzzled by ‘a fluid in my stomach’
In the summer of 2008, after having pains in my side, which turned out to be gallstones, and not feeling at all well I went to see my doctor who sent me to Bristol General Hospital to have an ultrasound scan. During the examination, the radiologist was rather puzzled by, as she said ‘a fluid in my stomach’.
I had cytoreduction and HIPEC and now I’ve climbed Mount Kilimanjaro!
My local hospital happens to be the centre in Israel for treating this disease and two of the surgeons working there have extensive experience in performing cytoreductive surgery and HIPEC. To those of you have undergone this procedure, I don’t need to say more. If you are still recovering or about to undergo it, I wish you excellent care, strength, patience, and a complete recovery.
My pseudomyxoma peritonei (PMP) was picked up on an ultrasound scan
CT scans showing the cyst getting bigger with each scan and a final scan showing fluid in my pelvis, the doctors thought I had a burst cyst. An MRI scan showed the fluid still there after 2 months where it should have been absorbed by then should it have been a cyst. The Christie Hospital in Manchester where straight away doctors diagnosed it as pseudomyxoma peritonei.