NewsKeep in touch with what is going on at Pseudomyxoma Survivor.
Keep in touch with what is going on by reading our Pseudomyxoma Survivor blog, including stories from survivors of PMP and appendix cancer. You can subscribe by email too.
Liam Clarke is a much-missed member of our PMP family and Kathy continues to support us even as she deals with her own loss. Susan and I had the privilege of meeting them both in Belfast last year and were both impressed then by the courage and grace with which he approached his illness.read more
We are delighted to welcome Salena Begley onto the Board of Pseudomyxoma Survivor. Salena’s “day job” involves working for a large successful charity and she brings with her a wealth of experience in both fundraising and allocating grants.read more
Serendipity! I love that word, it’s my favourite word, so if we are ever on Mr and Mrs together, you know my answer. It means “the occurrence of events by chance in a happy or beneficial way”. A chance meeting, orchestrated by a very special lady in Norfolk, has brought our two charities together.read more
On March 1st 2016, I was admitted to hospital with abdominal pain and operated on the next day. The surgeon found a tumour in my appendix and mucin throughout my abdomen. My story is about what happened next, my surgery, coping with the stress and the positives that came out of it.read more
Calling all budding artists!
We’ve been discussing charity Christmas cards in our support group which got us thinking here at Survivor Towers. Better late than never, we announce our 2016 competition to design the artwork for our cards.read more
I was diagnosed with PMP when I was 37; my son Aiden was 7 at the time. One of the hardest things I had to do was tell him about my diagnosis and tried to field many of the questions that he had. He’s an only child, so he had a lot of worries and anxieties - but we...read more
Four years ago, I had to give up my ticket to watch the London Olympics to go to a hospital appointment and be told I had PMP and had only ‘a few months’ if Basingstoke could not offer me CRS and HIPEC. Now I’m in Rio!read more
Steve was diagnosed with pseudomyxoma peritonei after complaining of stomach pains. Now his wife, Zoe, is organising a charity auction at The Royal Hotel, Mundesley in Norfolk.read more
If you were unable to join us for the first PMP Community webinar with our friends at RareConnect, the video is now available to watch. You can also download the presentation slides.read more
As part of my commitment to raising awareness of PMP, I am also a Macmillan Cancer Voice. Cancer Voices are people from across the UK who share their experiences to help shape cancer services and improve cancer care. I’ve been to a few meetings in the past and more recently I have been reviewing books for them.read more
We’re are very sad to share with you the news of the passing of Dawn Green, the founder of Pseudomyxoma Survivor. Dawn was first diagnosed with Pseudomyxoma Peritonei when aged just 30 years old and given three months to live. Never one to give in and take something...read more
On 20th April, Susie went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers.read more
Pseudomyxoma Survivor plans to appoint further well-qualified trustees to help steer the charity to the next level, continuing our world-class patient support through our support groups and buddy scheme, raise awareness and support research as well as improve financial management through ensuring that all donations to the charity are used efficiently and effectively in support of its stated charitable aims.read more
Andrew starts his mammoth walk today – starting today at St Bees on the west coast and finishing on Saturday next week at Robin Hood Bay on the east coast.read more
This was the hardest thing I ever made, but it was more than worth it. I don’t want other families to have to deal with this.read more
February 4th marks World Cancer Day, the one day in the year when the world comes together to raise awareness of cancer and also to encourage its prevention, detection and treatment. With the 'Cancer Moonshot' in the US and new tests and treatments...read more
The last year and a half has been a profound and unmooring experience, and one I turn over in my mind with gratitude, disbelief, and amazement.read more
Shana shared her story about appendix cancer on KVUE and had a blog post published to support it.read more
It’s tough being only 20 years old and a cancer patient at that. Mainly because no one expects or even wants to believe you could even end up developing cancer, and the worst culprits are medical professionals. True, the odds are so low it’s a waste of time to even bother, but that ‘waste of time’ could have cost me my life!read more
James and I know that our lives will never be what we once planned. Not being able to have children is still very hard for us to come to terms with but we know that it was necessary to improve my chance of long-term survival. We take each day as it comes and are thankful for the life that we are given the chance to live, not taking anything for granted.read more
Authors posting articles on our blog are patients and family caregivers who write their articles with the goal of sharing their experiences fellow patients and their families.
As survivors and carers, information here is from our perspective – we are not health care professionals. We are all individuals, everyone is different. We recommend that you take advice from your doctors for specific information.
We hope our blog has inspired you and perhaps you have a story to share – let us know if it has. You can leave a comment on a story or you can contact us with yours.